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《埃克塞特活动无限声明:囊性纤维化的体力活动和运动》:国际多学科、循证专家共识的方法学和结果。

The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus.

机构信息

Children's Health and Exercise Research Centre, Sport and Health Science, 3286University of Exeter, Exeter, UK.

Royal Devon and Exeter NHS Foundation Trust Hospital, Exeter, UK.

出版信息

Chron Respir Dis. 2022 Jan-Dec;19:14799731221121670. doi: 10.1177/14799731221121670.

Abstract

BACKGROUND

The roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.

METHOD

On 30 June and 1 July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.

RESULTS

The final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.

CONCLUSION

This consensus can be used to support health promotion by relevant stakeholders for people with CF.

摘要

背景

体力活动(PA)和运动在囊性纤维化(CF)的管理中的作用已得到认可,这体现在众多护理标准和治疗指南中。然而,信息非常简短,而且 PA 和运动作为多方面的行为,在制定和推广这些指南时需要广泛的利益相关者的投入。

方法

2021 年 6 月 30 日和 7 月 1 日,来自 11 个国家的 39 名利益相关者,包括研究人员、医疗保健专业人员和患者,参加了一次虚拟会议,就 CF 患者的 PA 和运动达成了一项基于证据和知情的专家共识。该共识涵盖了六个主题:(i)以患者和系统为中心的结果,(ii)健康益处,(iii)测量,(iv)处方,(v)临床注意事项,以及(vi)未来方向。共识是通过逐步的过程达成的,包括:(i)基于书面证据的摘要;(ii)对摘要的同行评审;(iii)向共识小组口头陈述并对修订后的摘要提出同行质疑;以及(iv)对最终建议的摘要进行匿名投票,以通过共识声明。

结果

最终的共识文件包括 24 项声明,其中 30 项提议中有 24 项声明超过了共识阈值(>80%的同意率)。

结论

该共识可用于支持 CF 患者相关利益相关者的健康促进。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6277/9459449/345d9b4d31f6/10.1177_14799731221121670-fig1.jpg

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