Physiotherapy Department, Women's and Children's Hospital, SA Health, 72 King William Rd, North Adelaide, SA, 5006, Australia.
Allied Health and Human Performance, University of South Australia, GPO Box 2471, Adelaide, SA, 5001, Australia.
BMC Pulm Med. 2022 Sep 10;22(1):342. doi: 10.1186/s12890-022-02141-5.
Physiotherapy-related data, such as airway clearance techniques (ACTS), physical activity and aerobic fitness are not consistently included in international cystic fibrosis (CF) data registries. This study aimed to pilot the collection of ACTS, physical activity and fitness in a hospital CF clinic, as a step towards informing future national implementation.
This study was undertaken in a CF clinic within a major tertiary hospital. Patients and families were invited to participate. Participants completed self-report questionnaires on ACT use and those aged ≥ 10 years completed a physical activity questionnaire (Core Indicators and Measures of Youth Health Survey) and aerobic fitness test (the A-STEP test). Participants also completed a survey to explore the tolerance and acceptability of the fitness test, and the perceived accuracy of the self-reported data collection.
Forty patients agreed to participate in the study (mean age = 9.8, SD = 4.1 years old; 52.5% female). All patients and/or families that were approached agreed to participate and completion rate for the ACTs and physical activity surveys was 98% and 100% (respectively). Completion rate for the fitness test was 55%, due to time constraints. Most participants agreed (≥ 90%) they could accurately provide ACT and physical activity data, and the assessments were tolerable and acceptable.
Patients with CF and their families are able to and can acceptably provide physiotherapy-related data, and collecting self-report ACTs and physical activity data is highly feasibly during routine CF clinic visits. However, aerobic fitness testing using the A-STEP test may be less feasible in clinic environments, due to time constraints.
气道清除技术（ACT）、身体活动和有氧健身等物理治疗相关数据并未在国际囊性纤维化（CF）数据登记处中得到一致收录。本研究旨在试点收集医院 CF 诊所中的 ACT、身体活动和健身数据，以为未来的全国实施提供信息。
本研究在一家大型教学医院的 CF 诊所进行。邀请患者及其家属参与。参与者完成了关于 ACT 使用的自我报告问卷，年龄≥10 岁的参与者完成了身体活动问卷（核心指标和青少年健康调查措施）和有氧健身测试（A-STEP 测试）。参与者还完成了一项调查，以探讨健身测试的耐受性和可接受性，以及自我报告数据收集的准确性。
40 名患者同意参与该研究（平均年龄 9.8 岁，标准差 4.1 岁；52.5%为女性）。所有被接触到的患者和/或家属均同意参与，ACT 和身体活动调查的完成率分别为 98%和 100%（分别）。由于时间限制，健身测试的完成率为 55%。大多数参与者（≥90%）同意他们能够准确提供 ACT 和身体活动数据，并且评估是可耐受和可接受的。
CF 患者及其家属能够接受并可接受地提供与物理治疗相关的数据，并且在常规 CF 诊所就诊期间，收集自我报告的 ACT 和身体活动数据具有高度可行性。然而，由于时间限制，使用 A-STEP 测试进行有氧健身测试在诊所环境中可能不太可行。
