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物理治疗结局(气道廓清、体力活动和体能)是否应记录在澳大利亚囊性纤维化数据登记处?一种共识方法。

Should the physiotherapy outcomes airway clearance, physical activity and fitness be recorded on the Australian Cystic Fibrosis Data Registry? A consensus approach.

机构信息

Physiotherapy Department, Women's and Children's Hospital, SA Health, 72 King William Rd, North Adelaide, SA, 5006, Australia.

Allied Health and Human Performance, University of South Australia, GPO Box 2471, Adelaide, SA, 5001, Australia.

出版信息

BMC Pulm Med. 2021 Sep 21;21(1):298. doi: 10.1186/s12890-021-01669-2.

DOI:10.1186/s12890-021-01669-2
PMID:34548053
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8456641/
Abstract

BACKGROUND

Physiotherapy is a cornerstone of cystic fibrosis (CF) management, yet the Australian CF Data Registry (ACFDR) currently does not record physiotherapy-related data. This study aimed to gather opinions from lead Australian CF physiotherapists regarding the importance and feasibility of collecting physiotherapy-related data on the ACFDR.

METHODS

A three-round online Delphi survey was conducted to gather expert stakeholder opinion and consensus agreement. Lead physiotherapists from all 23 Australian CF centres were invited to participate. Round one explored the potential benefits, barriers and importance of recording three physiotherapy-related domains on the ACFDR: airway clearance, physical activity and fitness. Subsequent rounds were developed based on the findings from the previous round and sought consensus (80% agreement) for the inclusion of physiotherapy-related data on the ACFDR and for the most appropriate methods of collecting such data.

RESULTS

The response rate was > 80% for all rounds. Participants agreed that collection of airway clearance, physical activity and fitness data on the ACFDR was important and feasible. Findings suggested that airway clearance and physical activity should be collected using self-reported questionnaires, while fitness should be measured using a field-based test.

CONCLUSIONS

Australian lead CF physiotherapists believe that collection of airway clearance, physical activity and fitness on the ACFDR is important and feasible. Future work is needed to pilot the data collection procedure to examine its feasibility in real-world clinical settings. This study demonstrates how Delphi methodology can provide a contemporary summary of expert clinicians' opinion that may underpin nation-wide health service improvement.

摘要

背景

物理疗法是囊性纤维化(CF)管理的基石,但澳大利亚 CF 数据登记处(ACFDR)目前并未记录与物理疗法相关的数据。本研究旨在收集澳大利亚主要 CF 物理治疗师对在 ACFDR 上收集与物理疗法相关数据的重要性和可行性的意见。

方法

进行了三轮在线 Delphi 调查,以收集专家利益相关者的意见和共识。邀请所有 23 个澳大利亚 CF 中心的首席物理治疗师参加。第一轮探讨了在 ACFDR 上记录三个与物理疗法相关领域(气道清除、体力活动和健康)的潜在益处、障碍和重要性:气道清除、体力活动和健康。随后的几轮是根据前一轮的结果制定的,并寻求对在 ACFDR 上记录与物理疗法相关的数据以及收集此类数据的最合适方法的共识(80%的共识)。

结果

所有轮次的回复率均超过 80%。参与者一致认为在 ACFDR 上收集气道清除、体力活动和健康数据很重要且可行。研究结果表明,气道清除和体力活动应使用自我报告问卷进行收集,而健康应使用现场测试进行测量。

结论

澳大利亚主要 CF 物理治疗师认为在 ACFDR 上收集气道清除、体力活动和健康数据很重要且可行。未来需要进行试点数据收集程序,以检验其在实际临床环境中的可行性。本研究展示了 Delphi 方法如何提供专家临床医生意见的现代概述,这些意见可能支持全国范围内的卫生服务改善。

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