Hochman Yael, Werner Shirli, Shpigelman Carmit-Noa
School of Social Work, Sapir Academic College, D.N. Hof Ashkelon, 79165, Israel.
Paul Baerwald School of Social Work and Social Welfare, Hebrew University of Jerusalem, Jerusalem, Israel.
J Autism Dev Disord. 2024 Jul 30. doi: 10.1007/s10803-024-06492-2.
This study explored the coping experiences of mothers of children with disabilities during the COVID-19 pandemic in Israel. Semi-structured in-depth interviews were conducted with 14 mothers. The data were thematically analyzed to gain in-depth understanding of their coping experiences. The findings indicated that COVID-related restrictions disrupted the family routine and added a significant burden for the mothers as primary caregivers, and for the family system as a whole. Three distinct types of coping experiences arose from the analysis: surviving the crisis, controlling the crisis, and growing out of the crisis. Three key elements differentiated these three types: the perceptions of the meaning of the pandemic for parental roles and of the response of the education and welfare systems to the children's needs - in routine and during COVID-19; coping with the different pandemic challenges; and the implications of both COVID-19 and the mothers' coping strategies for the functional and emotional status of their children, themselves, and family relations. The results are discussed in light of models of family stress and coping, focusing on the tension between the mothers' caregiving role and maternal roles as warranting particular attention by professionals and policymakers.
本研究探讨了以色列新冠疫情期间残疾儿童母亲的应对经历。对14位母亲进行了半结构化深度访谈。对数据进行了主题分析，以深入了解她们的应对经历。研究结果表明，与新冠疫情相关的限制打乱了家庭日常，给身为主要照料者的母亲以及整个家庭系统带来了沉重负担。分析得出了三种不同类型的应对经历：挺过危机、控制危机和从危机中成长。区分这三种类型的有三个关键要素：对疫情对父母角色的意义以及教育和福利系统在日常及新冠疫情期间对儿童需求的反应的认知；应对不同的疫情挑战；以及新冠疫情和母亲的应对策略对其子女、自身及家庭关系的功能和情感状况的影响。根据家庭压力与应对模型对研究结果进行了讨论，重点关注母亲照料角色与母亲角色之间的紧张关系，认为这值得专业人员和政策制定者特别关注。
