Andrew S. Buck, The Ohio State University Nisonger Center; Richard Chapman, Virginia Commonwealth University; Gloria L. Krahn, Oregon State University; Christine Brown, Braden Gertz, and Susan M. Havercamp, The Ohio State University Nisonger Center; and The Ohio State University Nisonger RRTC on Health and Function.
Intellect Dev Disabil. 2024 Aug 1;62(4):260-273. doi: 10.1352/1934-9556-62.4.260.
Inclusive research combines the expertise of academically trained researchers with the lived experience of individuals with disabilities to render results that are more accessible, accountable, and meaningful to the disability community. In this case study, adults with intellectual and developmental disabilities (IDD) contributed as co-researchers to a series of studies on mental health of adults with intellectual disability. The research model, specific engagement strategies, and lessons learned are shared. Feedback from members of the research team suggests that including adults with IDD as co-researchers benefited investigators, co-researchers with IDD, and project outcomes. Our case study emphasizes the valuable contributions of research partners with IDD and provides a model that may be adapted and utilized by researchers to enhance their practice.
包容性研究将学术训练有素的研究人员的专业知识与残疾人士的生活经验相结合,使研究结果更易于残疾群体理解、更具问责制并更有意义。在这个案例研究中,智障和发育障碍(ID)成年人作为共同研究者参与了一系列关于智障成年人心理健康的研究。分享了研究模型、具体参与策略和经验教训。研究团队成员的反馈表明,让智障成年人作为共同研究者使调查员、智障共同研究者和项目成果受益。我们的案例研究强调了智障研究伙伴的宝贵贡献,并提供了一种可供研究人员采用和利用的模式,以增强他们的实践。