Wilder Carolyn Ann
Carolyn Ann Wilder, BSN, RN , is registered nurse, Neurosciences Division, University of California San Diego; and PhD student, Loma Linda University School of Nursing, CA.
J Hosp Palliat Nurs. 2023 Feb 1;25(1):12-17. doi: 10.1097/NJH.0000000000000912. Epub 2022 Sep 27.
Multiple sclerosis (MS) affects more than 2.8 million people worldwide and is an incurable, heterogeneous, chronic, degenerative, demyelinating, immune-mediated neurological disease of the central nervous system. It affects the physical, mental, psychosocial, financial, and spiritual dimensions of patients and their families. Given this illness trajectory and the multiple complex symptoms associated with MS, palliative care services would improve the quality of life for MS patients. Palliative care is a human right for all patients with a life-limiting, progressive disease. The goal of palliative care is the prevention and relief of suffering by means of assessment and treatment that holistically addresses symptoms and suffering. Thus, this article argues for the early integration of palliative care for persons given a diagnosis of MS. This argument is underscored by the analysis of a case study of a typical patient with MS who would have benefited from conjunctive palliative care.
多发性硬化症（MS）在全球影响着超过280万人，是一种无法治愈、异质性、慢性、退行性、脱髓鞘、免疫介导的中枢神经系统神经疾病。它会影响患者及其家庭的身体、心理、社会心理、经济和精神层面。鉴于这种疾病的发展轨迹以及与MS相关的多种复杂症状，姑息治疗服务将改善MS患者的生活质量。姑息治疗是所有患有危及生命的进行性疾病患者的一项人权。姑息治疗的目标是通过全面解决症状和痛苦的评估和治疗来预防和减轻痛苦。因此，本文主张对被诊断为MS的患者尽早整合姑息治疗。对一名典型的MS患者的案例研究分析强调了这一观点，该患者若接受联合姑息治疗将会受益。
