Airoldi Marina J, Vieira Beatriz S, Teplicky Rachel, Chalfun Deborah, Bonfim Rafael G A S, Mancini Marisa C, Rosenbaum Peter, Brandão Marina B
Nossa Casa Institute, Campinas, Brazil.
CanChild Centre for Childhood Disability, Hamilton, ON, Canada.
Front Rehabil Sci. 2021 Jul 19;2:709983. doi: 10.3389/fresc.2021.709983. eCollection 2021.
Knowledge translation (KT) is gaining attention in the pediatric rehabilitation field. is the first organization in Brazil aiming to foster cerebral palsy (CP) awareness and empower families by discussing reliable information. This study aims to build a network where individuals with CP and their families, researchers, health care professionals, and services can communicate and share experiences. In this article, we describe the experience of planning and conducting an educational and interactive online workshop to foster principles of family-centered service (FCS). We used the action cycle from the Knowledge to Action (KTA) framework to describe and ground the proposed activities. In Module 1, "Challenges and barriers to incorporate family-centered principles," we discussed the historical perspective, main principles, and challenges related to FCS implementation. Module 2, "What is my contribution to the family-centered service?" was aimed to foster strategies to improve the implementation of principles of FCS in the care of children with disabilities. In Module 3, "What can we do together?" the groups presented their ideas and suggestions. This interactive and educational workshop was an opportunity for to disseminate accessible and reliable information regarding FCS and to empower families to participate actively in the rehabilitation process and advocate for the best provision of care for their children. Future actions of include the coordination of a national conference to connect families, individuals with CP, healthcare and rehabilitation professionals, and researchers. There is also a need, and opportunity, for formal evaluation of these KT activities.
知识转化（KT）在儿科康复领域正受到关注。是巴西首个旨在通过讨论可靠信息来提高对脑瘫（CP）的认识并增强家庭能力的组织。本研究旨在建立一个网络，使脑瘫患者及其家庭、研究人员、医疗保健专业人员和服务机构能够交流并分享经验。在本文中，我们描述了策划和举办一场教育性互动在线研讨会以促进家庭中心服务（FCS）原则的经验。我们使用了从知识到行动（KTA）框架中的行动循环来描述并落实所提议的活动。在模块1“纳入家庭中心原则的挑战与障碍”中，我们讨论了历史视角、主要原则以及与实施家庭中心服务相关的挑战。模块2“我对家庭中心服务的贡献是什么？”旨在培养策略，以改善在照顾残疾儿童方面家庭中心服务原则的实施。在模块3“我们可以一起做什么？”中，各小组展示了他们的想法和建议。这场互动式教育研讨会为传播关于家庭中心服务的可获取且可靠的信息提供了契机，并增强了家庭积极参与康复过程以及为子女争取最佳护理服务的能力。未来的行动包括协调召开一次全国性会议，以连接家庭、脑瘫患者、医疗保健和康复专业人员以及研究人员。对这些知识转化活动进行正式评估也是必要且有机会的。
