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描绘慢性疼痛管理的改善:一项多模式纵向解释性现象学分析研究。

Portraying improvement in the management of chronic pain: A multi-modal longitudinal interpretative phenomenological analysis study.

作者信息

Nizza Isabella E, Smith Jonathan A, Kirkham Jamie A

机构信息

Department of Psychological Sciences, Birkbeck University of London, London, United Kingdom.

Kent Community Health NHS Trust, Ashford, United Kingdom.

出版信息

Front Pain Res (Lausanne). 2022 Sep 20;3:901271. doi: 10.3389/fpain.2022.901271. eCollection 2022.

Abstract

Chronic pain is a common, profoundly disabling and complex condition whose effects on identity may explain the distress experienced by those affected by it. This paper concerns a study exploring how the relationship with pain and sense of self evolved following participation in a pain management program (PMP). Participants were interviewed at three timepoints: before attending a PMP, 1 month after the PMP and 6 months after the PMP. To facilitate a deep experiential description of pain and its effects, interviews were guided by participant-generated drawings of pain and Self. Interviews and drawings were analyzed longitudinally using interpretative phenomenological analysis. The evolving experience of participants was outlined through different trajectory types. Here we describe the upward and positive trajectory of three female participants who were able to regain control over their lives. From a state of psychological stress where pain was represented as an aggressive and oppressive presence, participants' drawings, their narratives and indeed their lives, changed for the best. Pain stopped being the main feature, they were able to integrate it into their lives, make important changes and find a new balance. The results demonstrate the idiosyncratic nature of chronic pain and offer a nuanced account of its links to the lifeworld of those living with it.

摘要

慢性疼痛是一种常见、严重致残且复杂的病症,其对个体身份的影响或许可以解释患者所经历的痛苦。本文涉及一项研究,探讨参与疼痛管理项目(PMP)后,与疼痛的关系及自我认知是如何演变的。在三个时间点对参与者进行了访谈:参加PMP之前、PMP之后1个月以及PMP之后6个月。为了深入体验性地描述疼痛及其影响,访谈以参与者绘制的疼痛与自我的图画为引导。使用解释现象学分析对访谈和图画进行纵向分析。通过不同的轨迹类型勾勒出参与者不断演变的经历。在此,我们描述了三名能够重新掌控自己生活的女性参与者的积极向上轨迹。从疼痛被描绘为具有攻击性和压迫性的心理压力状态,参与者的图画、叙述乃至他们的生活都向好的方向转变。疼痛不再是主要特征,他们能够将其融入生活,做出重要改变并找到新的平衡。研究结果揭示了慢性疼痛的独特性质,并对其与慢性疼痛患者生活世界的联系进行了细致入微的阐述。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0aa5/9530133/e27e11f70492/fpain-03-901271-g0001.jpg

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