Hariri School of Nursing, American University of Beirut, Beirut, Lebanon.
Faculty of Health Sciences-University of Balamand, Al-Kurah, Lebanon.
Ann Palliat Med. 2022 Oct;11(10):3292-3314. doi: 10.21037/apm-22-525. Epub 2022 Oct 17.
Pediatric palliative care is a holistic approach that aims to enhance the quality of life of seriously ill children and their families. Despite the documented benefits, many barriers challenge early integration of such care. The lack of knowledge and negative attitudes and beliefs toward pediatric palliative care are often cited among these barriers. This narrative review aims to summarize the existing literature regarding knowledge, attitudes and beliefs toward pediatric palliative care among healthcare professionals, parents and communities.
Four databases were searched: Medline, EMBASE, PsychINFO, and Cumulative Index to Nursing and Allied Health Literature Complete. The search strategy combined Medical Subject Headings, terms and keywords using Boolean operators to retrieve references addressing each concept of interest within the English literature. The initial search was conducted in August 2020 and updated in August 2021. No date limits were set. Two independent authors screened the retrieved papers for eligibility.
The majority of the 60 retrieved articles (n=49, 82%) were derived from high-income countries, with almost half of them from the United States. The references from developing countries were scattered across continents. The perspectives of healthcare professionals were more extensively explored compared to parents and community samples. Reports describe confusion between pediatric palliative care and end-of-life care. Yet, a positive attitude toward pediatric palliative care prevails whenever respondents possess accurate information about such care.
儿科姑息治疗是一种整体方法，旨在提高重病儿童及其家庭的生活质量。尽管有文献记载其益处，但许多障碍挑战了此类护理的早期整合。缺乏知识以及对儿科姑息治疗的负面态度和信念常常是这些障碍之一。本叙述性综述旨在总结关于医疗保健专业人员、父母和社区对儿科姑息治疗的知识、态度和信念的现有文献。
我们在四个数据库中进行了搜索：Medline、EMBASE、PsychINFO 和 Cumulative Index to Nursing and Allied Health Literature Complete。搜索策略使用布尔运算符组合了医学主题词、术语和关键词，以检索在英文文献中涉及每个感兴趣概念的参考文献。最初的搜索于 2020 年 8 月进行，并于 2021 年 8 月进行了更新。未设置日期限制。两位独立作者筛选了符合条件的检索论文。
检索到的 60 篇文章（n=49，82%）中，大多数来自高收入国家，其中近一半来自美国。来自发展中国家的参考文献分散在各大洲。与父母和社区样本相比，更广泛地探讨了医疗保健专业人员的观点。报告描述了儿科姑息治疗和临终关怀之间的混淆。然而，只要受访者对姑息治疗有准确的了解，他们就会对儿科姑息治疗持积极态度。
