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东地中海区域首个区域跨学科儿科姑息治疗研讨会:儿科姑息治疗整合的开创性集体举措。

The first regional interdisciplinary paediatric palliative care (PPC) workshop for the Eastern Mediterranean Region: a groundbreaking collective step for PPC integration.

作者信息

Rassam Rima Saad, Lion Ryan R, Cherkaoui Siham, Hessissen Laila, Garcia-Quintero Ximena, Najjar Lama Sayegh, Noun Dolly, Hanna Janane, Yamout Rana, Resham Shahzadi, Al Habaiba Khaled, Al-Nassan Anwar, El-Khoury Joe, Rayala Spandana, Alotaibi Qutaibah, Gafer Nahla, Troisi Giuseppe, Downing Julia, Rasul Suheir, Jeha Sima, Abraham Monnie, McNeil Michael J

机构信息

Department of Global Pediatric Medicine, St. Jude Children's Research Hospital, Memphis, TN 38105, USA.

https://orcid.org/0000-0002-8232-8733.

出版信息

Ecancermedicalscience. 2025 Jul 17;19:1948. doi: 10.3332/ecancer.2025.1948. eCollection 2025.

Abstract

Amidst the global disparities in providing Paediatric Palliative Care (PPC), the compounded realities in the Eastern Mediterranean region intensify the need for palliative care for children with cancer. This region hosts 12% of children needing PPC worldwide within limited specialised services, training and resources exacerbated by political instabilities. Immediate effective responses may reside in promoting interdisciplinary capacity-building combined with action planning among healthcare professionals, stakeholders and advocates for patients and their families. In response to these pressing needs, the First Regional Interdisciplinary PPC Workshop was held in-person in Rabat, Morocco on 6-8 November 2024, aiming to strengthen regional interdisciplinary healthcare professionals' capacity through training and collaborative action planning to improve PPC integration in cancer treatment. Eighty-five attendees representing 15 countries including regional healthcare professionals, international experts, foundation representatives and policymakers united in the commitment to promote PPC integration and enhance the quality of life for children with palliative care needs, particularly those with cancer living in this region. Over 3 days, participants engaged in training, discussions and action planning. Day one provided essential skills to deliver PPC at the patient care level (micro-level), day two discussed institutional implementation of PPC services (meso-level), day three tackled national and regional endeavours to promote PPC integration (macro-level). At the conclusion of the workshop, participants gained knowledge and confidence in various PPC skills. They shared their plans to establish PPC teams/units, apply symptom management and communication skills, train colleagues within their settings, conduct research and maintain networking to encourage collaboration opportunities. The workshop marked a pivotal step to deepen understanding of the PPC landscape and resources in the region. This impactful experience laid the foundations for different opportunities in practice, research, policy and advocacy to accelerate PPC integration in the Eastern Mediterranean region, fostering collective efforts to improve childhood cancer care globally.

摘要

在全球提供儿科姑息治疗(PPC)存在差距的背景下,东地中海地区复杂的现实情况加剧了对癌症患儿姑息治疗的需求。该地区有全球12% 需要PPC的儿童,但专业服务、培训和资源有限,且政治不稳定使情况更加恶化。立即采取有效的应对措施可能在于促进医疗专业人员、利益相关者以及患者及其家属的倡导者之间的跨学科能力建设和行动计划。为应对这些紧迫需求,2024年11月6日至8日,首届区域跨学科PPC研讨会在摩洛哥拉巴特举行,旨在通过培训和协作行动计划加强区域跨学科医疗专业人员的能力,以改善PPC在癌症治疗中的整合。来自15个国家的85名与会者,包括区域医疗专业人员、国际专家、基金会代表和政策制定者,共同致力于促进PPC整合,提高有姑息治疗需求儿童的生活质量,特别是该地区患癌症的儿童。在3天时间里,与会者参与了培训、讨论和行动计划制定。第一天提供了在患者护理层面(微观层面)提供PPC的基本技能,第二天讨论了PPC服务的机构实施(中观层面),第三天探讨了国家和区域为促进PPC整合所做的努力(宏观层面)。研讨会结束时,与会者在各种PPC技能方面获得了知识和信心。他们分享了建立PPC团队/单位、应用症状管理和沟通技能、在各自机构内培训同事、开展研究以及保持网络联系以促进合作机会的计划。该研讨会是加深对该地区PPC情况和资源理解的关键一步。这一富有成效的经历为实践、研究、政策和宣传方面的不同机会奠定了基础,以加速东地中海地区的PPC整合,促进全球为改善儿童癌症护理而做出的集体努力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/83b7/12426498/8d04ac6cb6db/can-19-1948fig1.jpg

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