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本文引用的文献

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2
Navigating the Minefield: Managing Refusal of Medical Care in Older Adults with Chronic Symptoms of Mental Illness.穿越雷区:管理有慢性精神疾病症状的老年人拒绝医疗护理。
Clin Interv Aging. 2021 Jul 12;16:1315-1325. doi: 10.2147/CIA.S311773. eCollection 2021.
3
Harmful Choices, the Case of C, and Decision-Making Competence.有害选择、C的案例与决策能力
Am J Bioeth. 2022 Oct;22(10):38-50. doi: 10.1080/15265161.2021.1941422. Epub 2021 Jul 13.
4
Perceptions of Medical Providers on Morality and Decision-Making Capacity in Withholding and Withdrawing Life-Sustaining Treatment and Suicide.医疗服务提供者对在维持生命治疗和自杀中隐瞒和撤销的道德和决策能力的看法。
AJOB Empir Bioeth. 2021 Oct-Dec;12(4):227-238. doi: 10.1080/23294515.2021.1887961. Epub 2021 Mar 15.
5
Capacity, Revisited: A Case Report of a Patient With Guardianship Who Refuses Life-Prolonging Treatment.重新审视行为能力:一例有监护人且拒绝延长生命治疗的患者的病例报告
J Acad Consult Liaison Psychiatry. 2021 Jan-Feb;62(1):79-82. doi: 10.1016/j.psym.2020.10.007. Epub 2020 Oct 26.
6
Evaluation of decision-making capacity in patients with dementia: challenges and recommendations from a secondary analysis of qualitative interviews.痴呆患者决策能力的评估:定性访谈二次分析中的挑战与建议
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7
How should the 'privilege' in therapeutic privilege be conceived when considering the decision-making process for patients with borderline capacity?在考虑边缘能力患者的决策过程时,应如何设想治疗特权中的“特权”?
J Med Ethics. 2021 Jan;47(1):47-50. doi: 10.1136/medethics-2019-105792. Epub 2020 Jan 7.
8
Euthanasia and Assisted Suicide of Persons With Dementia in the Netherlands.荷兰痴呆症患者的安乐死和协助自杀。
Am J Geriatr Psychiatry. 2020 Apr;28(4):466-477. doi: 10.1016/j.jagp.2019.08.015. Epub 2019 Aug 22.
9
Advance Directives for Refusing Life-Sustaining Treatment in Dementia.拒绝痴呆症生命维持治疗的预先指示。
Hastings Cent Rep. 2018 Sep;48 Suppl 3:S75-S79. doi: 10.1002/hast.919.
10
Evaluating Medical Decision-Making Capacity in Practice.评估实践中的医疗决策能力。
Am Fam Physician. 2018 Jul 1;98(1):40-46.

临终时拒绝治疗的决策能力:认识现实世界实践的必要性。

Decision-Making Capacity to Refuse Treatment at the End of Life: The Need for Recognizing Real-World Practices.

作者信息

Akabayashi Akira, Nakazawa Eisuke, Ino Hiroyasu

机构信息

Department of Biomedical Ethics, Faculty of Medicine, University of Tokyo, 7-3-1 Hongo, Bunkyo-ku, Tokyo 113-0033, Japan.

Division of Medical Ethics, School of Medicine, New York University, 227 East 30th Street, New York, NY 10016, USA.

出版信息

Clin Pract. 2022 Sep 22;12(5):760-765. doi: 10.3390/clinpract12050079.

DOI:10.3390/clinpract12050079
PMID:36286065
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9600193/
Abstract

End-of-life decision making is a troublesome ethical dilemma. These decisions should be made in trustful patient-doctor relationships. We aimed to propose a balanced approach when discussing this complex issue. We categorized the research into four approaches and suggest that a multidisciplinary approach may be appropriate. We also analyzed the pitfalls of the multidisciplinary approach. Our conclusion is two-fold. First, discussions in this field should be based on real-world practice. If this is not the case, the proposal may be armchair theory, which is not effective in a clinical setting. Second, interdisciplinary researchers should not stick to their position too firmly and should listen to others. Otherwise, proposals made will be paternalistic or philosophically biased. Therefore, when philosophical collaboration is applied to the topic of clinical bioethics, it is necessary to thoroughly examine different positions and carry out careful discussions with consideration for medical care settings. Researchers must also understand what is needed for a trustful patient-doctor relationship. By making such efforts, clinical bioethics will contribute to the wellbeing of patients.

摘要

临终决策是一个棘手的伦理困境。这些决策应该在医患之间相互信任的关系中做出。我们旨在提出一种平衡的方法来讨论这个复杂的问题。我们将相关研究分为四种方法,并认为多学科方法可能是合适的。我们还分析了多学科方法的缺陷。我们的结论有两点。首先,该领域的讨论应该基于实际的临床实践。否则,所提出的建议可能只是纸上谈兵,在临床环境中并无实效。其次,跨学科研究人员不应过于固执己见,而应倾听他人意见。否则,所提出的建议将是家长式的或存在哲学偏见。因此,当将哲学合作应用于临床生物伦理学主题时,有必要全面审视不同立场,并结合医疗环境进行仔细讨论。研究人员还必须了解建立医患信任关系所需的条件。通过做出这些努力,临床生物伦理学将有助于患者的福祉。