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从癌症护理中实施以人为本的数字健康平台中吸取的经验教训。

Lessons Learned from the Implementation of a Person-Centred Digital Health Platform in Cancer Care.

机构信息

Division of Experimental Medicine, Faculty of Medicine and Health Sciences McGill University, Montreal, QC H4A 3J1, Canada.

Centre Intégré Universitaire de Santé et de Services Sociaux (CIUSSS) du Centre-Ouest-de l'Île-de Montréal, Montreal, QC H3T 1E2, Canada.

出版信息

Curr Oncol. 2022 Sep 29;29(10):7171-7180. doi: 10.3390/curroncol29100564.

Abstract

The SARS-CoV-2 (COVID-19) pandemic has accelerated the development and use of digital health platforms to support individuals with health-related challenges. This is even more frequent in the field of cancer care as the global burden of the disease continues to increase every year. However, optimal implementation of these platforms into the clinical setting requires careful planning and collaboration. An implementation project was launched between the Centre intégré universitaire de santé et de services sociaux (CIUSSS) du Centre-Ouest-de-I'Île-de-Montreal and BELONG-Beating Cancer Together-a person-centred cancer navigation and support digital health platform. The goal of the project was to implement content and features specific to the CIUSSS, to be made available exclusively for individuals with cancer (and their caregivers) treated at the institution. Guided by Structural Model of Interprofessional Collaboration, we report on implementation processes involving diverse stakeholders including clinicians, hospital administrators, researchers and local community/patient representatives. Lessons learned include earlier identification of shared goals and clear expectations, more consistent reliance on virtual means to communicate among all involved, and patient/caregiver involvement in each step to ensure informed and shared decision making.

摘要

SARS-CoV-2(COVID-19)大流行加速了数字健康平台的发展和使用,以支持有健康相关挑战的个人。在癌症护理领域,这种情况更为常见,因为全球癌症负担每年都在持续增加。然而,要将这些平台最佳地应用于临床环境中,需要精心规划和协作。蒙特利尔西岛中部大学健康与社会服务整合中心(CIUSSS)与 BELONG-Beating Cancer Together 之间发起了一个实施项目,这是一个以患者为中心的癌症导航和支持数字健康平台。该项目的目标是实施针对 CIUSSS 的特定内容和功能,仅提供给在该机构接受治疗的癌症患者(及其护理人员)使用。在跨专业协作的结构模型的指导下,我们报告了涉及不同利益相关者的实施过程,包括临床医生、医院管理人员、研究人员和当地社区/患者代表。经验教训包括更早地确定共同目标和明确期望,更一致地依赖虚拟手段在所有相关方之间进行沟通,以及患者/护理人员在每个步骤中的参与,以确保知情和共同决策。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/ab62/9600520/23268cb17c54/curroncol-29-00564-g001.jpg

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