Manceau Charlotte, Constant Emilie, Brugallé Elodie, Wawrziczny Emilie, Sokolowski Céline, Flinois Bérengère, Baille Guillaume, Defebvre Luc, Dujardin Kathy, Antoine Pascal
Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, Villeneuve d'Ascq, France.
Neurology and Movement Disorders Department, CHU-Lille, Lille, France.
Br J Health Psychol. 2023 May;28(2):366-382. doi: 10.1111/bjhp.12629. Epub 2022 Oct 27.
The public health issue of the Parkinson's disease (PD) has led to a great deal of research that has highlighted the individual challenges faced by the person with the Parkinson's disease (PwPD) and the caregiving spouse. Few studies, however, have sought to understand the functioning of couples facing PD, by differentiating each stage, each of which has its own issues. In particular, the "honeymoon period", characterized by a symptomatic respite allowed by the effectiveness of treatments for motor symptoms, has been poorly documented, especially at the dyadic level.
This qualitative study, based on Interpretative Phenomenological Analysis, aimed to understand the experience of couples and their functioning at this stage. Fifteen couples participated in separate semi-structured interviews for each partner. The analyses highlighted four dyadic dynamics, which call into question the relevance of the term "honeymoon" to describe the experience of couples.
While some couples appear to adjust by means of flexible functioning and a positive reinterpretation of this experience, other dyads oscillate between rigid hyperprotection in the face of perceived distress or a vicious circle of control/avoidance and, in some cases, gradually slipping towards the erosion of the relationship.
These results show that the relational difficulties suffered by partners at this stage should be taken into account as soon as possible after the diagnosis. Strengthening the communication and the togetherness between partners, as well as working on dyadic emotional regulation, are particularly relevant options for these couples.
帕金森病（PD）的公共卫生问题引发了大量研究，这些研究突出了帕金森病患者（PwPD）及其照料配偶所面临的个体挑战。然而，很少有研究试图通过区分每个阶段（每个阶段都有其自身问题）来了解面对帕金森病的夫妻的功能状况。特别是，以运动症状治疗效果带来的症状缓解为特征的“蜜月期”，文献记载很少，尤其是在二元层面。
这项基于解释现象学分析的定性研究旨在了解夫妻在这个阶段的经历及其功能状况。15对夫妻的每位伴侣分别参与了半结构化访谈。分析突出了四种二元动态关系，这对用“蜜月”一词来描述夫妻经历的相关性提出了质疑。
虽然一些夫妻似乎通过灵活的功能运作和对这段经历的积极重新诠释来进行调整，但其他二元组在面对感知到的痛苦时，在僵化的过度保护或控制/回避的恶性循环之间摇摆不定，在某些情况下，关系逐渐走向破裂。
这些结果表明，伴侣在这个阶段所遭受的关系困难在诊断后应尽快得到重视。加强伴侣之间的沟通和亲密感，以及处理二元情感调节问题，对这些夫妻来说是特别相关的选择。
