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发育障碍青年的功能活动与沟通社交能力:一项定性研究

Functional activity and communication-social ability of youths with developmental disabilities: a qualitative study.

作者信息

Bania Theofani, Lyri Renate, Ntatsiou Foteini, Fousekis Konstantinos

机构信息

Department of Physiotherapy, University of Patras: Psaron 6, Egio 25100 Aigio, Greece.

出版信息

J Phys Ther Sci. 2022 Nov;34(11):745-751. doi: 10.1589/jpts.34.745. Epub 2022 Nov 1.

Abstract

[Purpose] To describe the functional activity and the communication-social ability levels of youths with developmental disabilities and to determine whether demographic factors predict these levels. [Participants and Methods] A mixed, observational and qualitative, study in which parents of students with developmental disabilities were interviewed based on the WeeFIM questions. Both quantitative and qualitative data were analysed. [Results] Data were collected for 30 youths with mild to severe developmental disabilities with mean age 18.5 ± 2.7 years (19 males). Mean WeeFIM total score was 106.2 ± 10.9, indicating relatively high functional and communication-social ability. No significant difference was observed for the total WeeFIM score between males and females and between adolescents and young adults with developmental disabilities. Main themes emerged from the interviews were: Difficulties with smooth and stable walking, transfers to/from bathtub and stairs. Also, youths are expressing a need for independence in self-care, while relationships with their peers are difficult and problems are primarily solved with help from their parents. [Conclusion] Despite the high functional and communication-social ability levels of a group of youths with developmental disabilities, parents revealed that youths had certain difficulties. Therapy should address such difficulties to promote independence and participation of these young people in the community.

摘要

[目的]描述发育障碍青少年的功能活动及沟通社交能力水平,并确定人口统计学因素是否能预测这些水平。[参与者与方法]一项混合的观察性与定性研究,基于儿童功能独立性测量(WeeFIM)问题对发育障碍学生的家长进行访谈。对定量和定性数据均进行了分析。[结果]收集了30名轻度至重度发育障碍青少年的数据,平均年龄18.5±2.7岁(19名男性)。儿童功能独立性测量总平均分是106.2±10.9,表明功能及沟通社交能力相对较高。发育障碍的男性与女性之间、青少年与青年之间在儿童功能独立性测量总分上未观察到显著差异。访谈中出现的主要主题有:平稳稳定行走困难、进出浴缸和上下楼梯困难。此外,青少年表示在自我照顾方面需要独立,而与同龄人关系困难,问题主要靠父母帮助解决。[结论]尽管一组发育障碍青少年的功能及沟通社交能力水平较高,但家长反映青少年仍存在某些困难。治疗应针对这些困难,以促进这些年轻人在社区中的独立性和参与度。

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