Prentice-Hoogervorst Lesley, Mayers Pat M
Division of Nursing and Midwifery, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa.
Health SA. 2022 Oct 27;27:1937. doi: 10.4102/hsag.v27i0.1937. eCollection 2022.
Transition of adolescents from paediatric to adult health services is an important aspect of caring for young people with chronic diseases. Successful transition of adolescents living with a transplant is critical for long-term survival into adulthood. This qualitative study explored the lived experience of adolescents in a South African setting following their planned and supported transition process.
To explore the lived experience of transition for adolescents who had received a renal or liver transplant as a child, from paediatric to adult transplant services in the public health sector.
Cape Town, South Africa.
Six purposively sampled adolescents, who had participated in a planned transition from a tertiary level children's hospital to the affiliated adult hospital, were interviewed in the setting and language of their choice. The transcribed interviews were analysed using an interpretative phenomenological analysis (IPA) approach.
Five themes emerged: living with uncertainty in a changing world; being known, not knowing, and knowing; ambivalent relationships; the journey of loss; and being heard. Pre-transition planning, support groups, and consistency of clinicians within an accepting environment facilitated the adolescents' individuation and acceptance of self-care responsibility.
Carefully planned, collaborative preparation and implementation of a facilitated psycho-supportive intervention for transition can facilitate adolescent cooperation and adherence, minimise the risk of psychological and medical sequelae, and support the adolescent in adapting to living with a transplant as an adult.
This study offers insight into the importance of planned and supported transitional care of adolescents living with an organ transplant.
青少年从儿科医疗服务向成人医疗服务的过渡是照顾慢性病青少年的一个重要方面。移植青少年的成功过渡对于成年后的长期生存至关重要。这项定性研究探讨了南非青少年在经过规划和支持的过渡过程后的生活经历。
探讨儿童时期接受肾移植或肝移植的青少年从儿科移植服务向公共卫生部门成人移植服务过渡的生活经历。
南非开普敦。
对六名有目的地抽样的青少年进行了访谈，他们参与了从三级儿童医院到附属成人医院的规划过渡，并选择了他们喜欢的地点和语言。使用解释性现象学分析（IPA）方法对转录的访谈进行分析。
出现了五个主题：在不断变化的世界中生活在不确定性中；被了解、不了解和了解；矛盾的关系；失落之旅；以及被倾听。过渡前规划、支持小组以及在接纳环境中临床医生的一致性促进了青少年的个性化和对自我护理责任的接受。
精心规划、协作准备和实施促进过渡的心理支持干预措施可以促进青少年的合作与依从性，将心理和医疗后遗症的风险降至最低，并支持青少年成年后适应移植后的生活。
本研究深入了解了对器官移植青少年进行规划和支持的过渡护理的重要性。
