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如何在公共政策中衡量残疾人的多维生活质量——以波兰为例。

How to measure multidimensional quality of life of persons with disabilities in public policies - a case of Poland.

作者信息

Grabowska Izabela, Antczak Radosław, Zwierzchowski Jan, Panek Tomasz

机构信息

SGH Warsaw School of Economics, Institute of Statistics and Demography, Warsaw, Poland.

出版信息

Arch Public Health. 2022 Nov 10;80(1):230. doi: 10.1186/s13690-022-00981-5.

DOI:10.1186/s13690-022-00981-5
PMID:36357899
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9647975/
Abstract

BACKGROUND

The aim of this paper is to construct a tool that can be used to measure multidimensional quality of life of persons with disabilities in comparison with population without disabilities for the purpose of monitoring of the UN Convention on the Rights of Persons with Disabilities (UNCRPD) in Poland.

METHODS

The Sen's capability approach was applied to conceptualize the quality of life in various life domains. We followed guidelines of The Quality of Life Framework developed within the European Statistical System on choosing the life domains in which the QoL should be measured. The QoL scores in each domain (covered by the UNCRPD) were constructed using multiply indicators and multiple causes model (MIMIC). All analysis were based on 2018 EU-SILC data for Poland. We constructed quality of life indicators for population with and without disabilities and compared the differences.

RESULTS

Persons without disability experienced higher QoL as compared to population with disabilities, overall and in various domains. Lower average QoL of persons with disabilities is a result of a lower share of those who experience high QoL. The biggest difference is observed for health and for productive and main activity domains. For material conditions and economic security and physical safety there was a moderate difference recorded. For the leisure and social relations domain there is almost no difference observed. Additionally, we identified diversified associations between such factors as age, gender, household situation, education, partner status, urbanization, health on the QoL across domains and analysed populations.

CONCLUSIONS

A tool developed in this paper can be calibrated to enable cross-country and in time comparisons between different populations and support evidenced-based social policy.

摘要

背景

本文旨在构建一种工具,用于衡量残疾人的多维生活质量,并与非残疾人进行比较,以监测波兰的《联合国残疾人权利公约》(UNCRPD)。

方法

应用森的能力方法来概念化各个生活领域的生活质量。我们遵循欧洲统计系统内制定的《生活质量框架》指南,选择应衡量生活质量的生活领域。使用多重指标和多因模型(MIMIC)构建每个领域(涵盖在UNCRPD内)的生活质量得分。所有分析均基于2018年波兰的欧盟收入和生活条件调查(EU-SILC)数据。我们构建了残疾人和非残疾人的生活质量指标,并比较了差异。

结果

总体而言,在各个领域,非残疾人的生活质量高于残疾人。残疾人平均生活质量较低是因为体验到高生活质量的人数比例较低。在健康以及生产和主要活动领域观察到最大差异。在物质条件、经济安全和人身安全方面记录到适度差异。在休闲和社会关系领域几乎没有观察到差异。此外,我们确定了年龄、性别、家庭状况、教育程度、伴侣状况、城市化、健康等因素与各领域及分析人群的生活质量之间的多样化关联。

结论

本文开发的工具可以进行校准,以便在不同人群之间进行跨国和及时比较,并支持基于证据的社会政策。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/d3d6dc1c5bd5/13690_2022_981_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/40da55af5633/13690_2022_981_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/6e5b4e502097/13690_2022_981_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/f98d9d65a439/13690_2022_981_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/d3d6dc1c5bd5/13690_2022_981_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/40da55af5633/13690_2022_981_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/6e5b4e502097/13690_2022_981_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/f98d9d65a439/13690_2022_981_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d479/9647975/d3d6dc1c5bd5/13690_2022_981_Fig4_HTML.jpg

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