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知识、态度和行为:医疗、司法和教育专业人员中胎儿酒精谱系障碍。 系统评价。

Knowledge, attitudes, and practices of fetal alcohol spectrum disorder in health, justice, and education professionals: A systematic review.

机构信息

National Institute for Health Innovation, School of Population Health, The University of Auckland, New Zealand.

National Institute for Health Innovation, School of Population Health, The University of Auckland, New Zealand.

出版信息

Res Dev Disabil. 2022 Dec;131:104354. doi: 10.1016/j.ridd.2022.104354. Epub 2022 Nov 11.

Abstract

BACKGROUND AND AIMS

Fetal alcohol spectrum disorder (FASD) is one of the most common forms of developmental disability, and yet, anecdotally, is poorly understood by both the public and professionals across health, justice, education, and social services. This review aims to understand the knowledge, attitudes, and practices of professionals who work across a range of sectors - specifically health, education and justice - where they may encounter people with FASD, their families and caregivers.

METHOD

We conducted a systematic search for research using surveys or questionnaires to address knowledge, and attitudes of professionals in health, education, and justice with regards to FASD between 1990 and 2021. Our search consisted of electronic databases (APA PsychInfo, CINAHL, EMBASE, Medline, PubMed, and PAIS Index) and grey literature sources.

RESULTS

Our search yielded 971 results, of which 58 were relevant. The studies surveyed professionals from health (n = 35), education (n = 10), justice (n = 8), social services (n = 1), and multiple settings (n = 4). Most studies were conducted in North America. The areas surveyed included knowledge of FASD, attitudes towards people with FASD, experience with FASD, practices towards people with FASD, and education and training needs.

CONCLUSIONS

Knowledge, attitudes, and practices towards FASD have been surveyed extensively in healthcare professionals over the last 30 years, but less so with those working in justice and education sectors. Findings from surveys suggest that although most professionals had some knowledge of the effects of FASD, their knowledge of the specific criteria of Fetal Alcohol Syndrome (FAS) and FASD is poor across most professional groups, including most health professionals. Our review highlights the need to provide training and information across sectors ongoing surveillance to determine where gaps in knowledge are and what resources are needed.

WHAT THIS PAPER ADDS

This study is the first to systematically synthesize knowledge, attitudes, and practices toward FASD across different sectors. Poor knowledge and insufficient training were common. Knowledge, attitudes, and practices about FASD have been surveyed extensively in the healthcare setting, but surveys are more limited outside of this setting. Continuous surveillance is needed to identify and respond to knowledge gaps and changes in practice.

摘要

背景与目的

胎儿酒精谱系障碍(FASD)是最常见的发育障碍之一,但公众和医疗、司法、教育和社会服务等健康相关专业人员对其认识不足。本综述旨在了解跨多个领域(特别是医疗、教育和司法)工作的专业人员的知识、态度和实践,这些领域可能会遇到患有 FASD 的人及其家人和照顾者。

方法

我们进行了系统搜索,以查找 1990 年至 2021 年间使用调查或问卷研究健康、教育和司法专业人员对 FASD 的知识和态度的研究。我们的搜索包括电子数据库(APA PsychInfo、CINAHL、EMBASE、Medline、PubMed 和 PAIS Index)和灰色文献来源。

结果

我们的搜索结果为 971 项,其中 58 项相关。这些研究调查了来自医疗保健(n=35)、教育(n=10)、司法(n=8)、社会服务(n=1)和多个领域(n=4)的专业人员。大多数研究在美国进行。调查的领域包括 FASD 知识、对 FASD 患者的态度、FASD 经验、对 FASD 患者的实践以及教育和培训需求。

结论

过去 30 年来,医疗保健专业人员对 FASD 的知识、态度和实践进行了广泛调查,但在司法和教育领域的调查较少。调查结果表明,尽管大多数专业人员对 FASD 的影响有一定的了解,但他们对特定的胎儿酒精综合征(FAS)和 FASD 标准的了解在大多数专业群体中都很差,包括大多数医疗保健专业人员。我们的综述强调需要在各个部门提供培训和信息,进行持续监测,以确定知识差距在哪里以及需要哪些资源。

本文的新增内容

本研究是第一个系统地综合不同领域 FASD 的知识、态度和实践的研究。普遍存在知识匮乏和培训不足的情况。在医疗保健环境中广泛调查了 FASD 的知识、态度和实践,但在该环境之外的调查更为有限。需要进行持续监测,以识别和应对知识差距以及实践的变化。

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