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支持患有胎儿酒精谱系障碍的个体和照料者的技术:范围综述。

Technologies for Supporting Individuals and Caregivers Living With Fetal Alcohol Spectrum Disorder: Scoping Review.

机构信息

National Institute for Health Innovation, School of Population Health, The University of Auckland, Auckland, New Zealand.

Centre for Arts and Social Transformation, Faculty of Education and Social Work, The University of Auckland, Auckland, New Zealand.

出版信息

JMIR Ment Health. 2024 Jul 11;11:e51074. doi: 10.2196/51074.

DOI:10.2196/51074
PMID:38994826
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11259581/
Abstract

BACKGROUND

Fetal alcohol spectrum disorder (FASD) is a common developmental disability that requires lifelong and ongoing support but is often difficult to find due to the lack of trained professionals, funding, and support available. Technology could provide cost-effective, accessible, and effective support to those living with FASD and their caregivers.

OBJECTIVE

In this review, we aimed to explore the use of technology available for supporting people living with FASD and their caregivers.

METHODS

We conducted a scoping review to identify studies that included technology for people with FASD or their caregivers; focused on FASD; used an empirical study design; were published since 2005; and used technology for assessment, diagnosis, monitoring, or support for people with FASD. We searched MEDLINE, Web of Science, Scopus, Embase, APA PsycINFO, ACM Digital Library, JMIR Publications journals, the Cochrane Library, EBSCOhost, IEEE, study references, and gray literature to find studies. Searches were conducted in November 2022 and updated in January 2024. Two reviewers (CZC and HW) independently completed study selection and data extraction.

RESULTS

In total, 17 studies exploring technology available for people with FASD showed that technology could be effective at teaching skills, supporting caregivers, and helping people with FASD develop skills.

CONCLUSIONS

Technology could provide support for people affected by FASD; however, currently there is limited technology available, and the potential benefits are largely unexplored.

摘要

背景

胎儿酒精谱系障碍(FASD)是一种常见的发育障碍,需要终身和持续的支持,但由于缺乏受过培训的专业人员、资金和可用的支持,往往难以找到。技术可以为患有 FASD 的人和他们的照顾者提供具有成本效益、可及性和有效性的支持。

目的

在这篇综述中,我们旨在探讨可用于支持患有 FASD 的人和他们的照顾者的技术的使用。

方法

我们进行了范围综述,以确定包括针对 FASD 患者或其照顾者的技术的研究;重点关注 FASD;使用实证研究设计;自 2005 年以来发表;并使用技术进行 FASD 患者的评估、诊断、监测或支持。我们搜索了 MEDLINE、Web of Science、Scopus、Embase、APA PsycINFO、ACM Digital Library、JMIR 出版物期刊、Cochrane 图书馆、EBSCOhost、IEEE、研究参考文献和灰色文献,以找到研究。搜索于 2022 年 11 月进行,并于 2024 年 1 月更新。两名评审员(CZC 和 HW)独立完成了研究选择和数据提取。

结果

共有 17 项研究探索了针对 FASD 患者的可用技术,这些技术可以有效地教授技能、支持照顾者,并帮助 FASD 患者发展技能。

结论

技术可以为受 FASD 影响的人提供支持;然而,目前可用的技术有限,其潜在益处在很大程度上尚未得到探索。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e77f/11259581/add58163f87f/mental-v11-e51074-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e77f/11259581/add58163f87f/mental-v11-e51074-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e77f/11259581/add58163f87f/mental-v11-e51074-g001.jpg

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