Department of Physiotherapy, Monash University, Frankston, Victoria, Australia.
Monash Lung and Sleep, Monash Health, Clayton, Victoria, Australia.
Clin Respir J. 2023 Jan;17(1):59-69. doi: 10.1111/crj.13563. Epub 2022 Nov 20.
Pulmonary rehabilitation is recommended for people with bronchiectasis. Various education topics are included in these programmes, but the content is largely guided by the needs of people with other respiratory conditions.
With the education topics applicable to people with bronchiectasis unclear, we aimed to explore the perspective of adults with this condition on relevant educational topics in a pulmonary rehabilitation context.
Participants from the Australian Bronchiectasis Registry were invited to undertake a semi-structured interview. Interview transcripts were coded independently, with themes established by consensus (two researchers).
Twenty-one people participated. The major themes were greater clarity on the underlying cause of bronchiectasis and prognosis. Most sought knowledge about self-management strategies and treatments to address extra-pulmonary symptoms. Participants requested more information on physiotherapy options and the role of exercise and physical activity outside of pulmonary rehabilitation. Preferences were mixed for the education delivery model.
We have identified unmet educational topics of interest for people with bronchiectasis. Our study provides a framework for education topics desired by adults with bronchiectasis within a pulmonary rehabilitation setting. The topics identified will guide development of an education curriculum for pulmonary rehabilitation that is more fit-for-purpose for people with bronchiectasis.
肺康复被推荐用于支气管扩张症患者。这些方案包含各种教育主题，但内容在很大程度上是根据其他呼吸系统疾病患者的需求来指导的。
由于适用于支气管扩张症患者的教育主题尚不清楚，我们旨在探讨该疾病成人患者对肺康复背景下相关教育主题的看法。
邀请澳大利亚支气管扩张症登记处的参与者进行半结构化访谈。访谈记录由两名研究人员独立编码，并通过共识建立主题。
21 人参与。主要主题是更清楚地了解支气管扩张症的根本原因和预后。大多数人寻求有关自我管理策略和治疗非肺部症状的知识。参与者要求提供更多关于物理治疗选择以及肺康复之外的运动和体育活动的作用的信息。对教育提供模式的偏好不一。
我们已经确定了支气管扩张症患者感兴趣的未满足的教育主题。我们的研究为肺康复环境中成人支气管扩张症患者所需的教育主题提供了框架。确定的主题将指导更适合支气管扩张症患者的肺康复教育课程的开发。
