School of Healthcare Sciences, Cardiff University, Wales, UK.
School of Healthcare Sciences, Cardiff University, Wales, UK; School of Dentistry, Cardiff University, Wales, UK.
Acta Derm Venereol. 2024 Aug 23;104:adv40657. doi: 10.2340/actadv.v104.40657.
Skin conditions carry a significant physical, psychological, and social burden. People with skin conditions often engage in health-threatening behaviours that can worsen symptoms and increase cardiovascular disease risk. However, access to dedicated psychological and behaviour-change support is limited. The impact, management, and existing psychological support available to adults living with skin conditions was qualitatively explored to inform the development of a psychologically supportive digital intervention. Qualitative research involving a hybrid inductive- deductive approach was performed. Data collection and analysis were theoretically informed by the Common-Sense Model of Self-Regulation. Eight synchronous online group interviews with 43 English-speaking adults (≥ 18 years) with a range of skin conditions were conducted. Data were analysed using Reflexive Thematic Analysis. Three superordinate themes are outlined: (i) visibility underpinning life course impairment, (ii) seeking control amid uncertainty, and (iii) existing support for people with skin conditions. Skin conditions carry a substantial psychological burden, yet dermatology service provision is sub-optimal and patients often resort to seeking support from unreliable sources. Psychological support can have benefits, but barriers exist. This study reinforces the need for high-quality psychological support, and that patients wanted digital means to support effective self- management.
皮肤状况会给患者带来身体、心理和社会等多方面的沉重负担。患有皮肤疾病的人往往会采取一些威胁健康的行为,这些行为可能会使症状恶化,并增加心血管疾病的风险。然而,他们获得专门的心理和行为改变支持的机会有限。为了开发一种具有心理支持功能的数字干预措施,我们对成年人的皮肤状况的影响、管理和现有心理支持进行了定性研究,以获取相关信息。本研究采用了混合归纳演绎方法的定性研究。数据的收集和分析受到自我调节的常识模型的理论启发。通过同步在线小组访谈的方式对 43 名不同皮肤状况的成年英语使用者(≥18 岁)进行了研究。采用反思性主题分析方法对数据进行分析。结果确定了三个主要主题:(i)可见性导致生活轨迹受损,(ii)在不确定中寻求控制,以及(iii)现有的皮肤疾病支持。皮肤状况会给患者带来沉重的心理负担,但皮肤病学服务的提供并不理想,患者通常会寻求不可靠的来源来获得支持。心理支持可能会带来好处,但也存在障碍。这项研究强调了提供高质量心理支持的必要性,患者希望通过数字手段来支持有效的自我管理。