Suppr超能文献

成人皮肤病患者的影响、管理及现有心理支持的定性探索

A Qualitative Exploration of the Impact, Management, and Existing Psychological Support Available for Adults Living with Skin Conditions.

机构信息

School of Healthcare Sciences, Cardiff University, Wales, UK.

School of Healthcare Sciences, Cardiff University, Wales, UK; School of Dentistry, Cardiff University, Wales, UK.

出版信息

Acta Derm Venereol. 2024 Aug 23;104:adv40657. doi: 10.2340/actadv.v104.40657.

Abstract

Skin conditions carry a significant physical, psychological, and social burden. People with skin conditions often engage in health-threatening behaviours that can worsen symptoms and increase cardiovascular disease risk. However, access to dedicated psychological and behaviour-change support is limited. The impact, management, and existing psychological support available to adults living with skin conditions was qualitatively explored to inform the development of a psychologically supportive digital intervention. Qualitative research involving a hybrid inductive- deductive approach was performed. Data collection and analysis were theoretically informed by the Common-Sense Model of Self-Regulation. Eight synchronous online group interviews with 43 English-speaking adults (≥ 18 years) with a range of skin conditions were conducted. Data were analysed using Reflexive Thematic Analysis. Three superordinate themes are outlined: (i) visibility underpinning life course impairment, (ii) seeking control amid uncertainty, and (iii) existing support for people with skin conditions. Skin conditions carry a substantial psychological burden, yet dermatology service provision is sub-optimal and patients often resort to seeking support from unreliable sources. Psychological support can have benefits, but barriers exist. This study reinforces the need for high-quality psychological support, and that patients wanted digital means to support effective self- management.

摘要

皮肤状况会给患者带来身体、心理和社会等多方面的沉重负担。患有皮肤疾病的人往往会采取一些威胁健康的行为,这些行为可能会使症状恶化,并增加心血管疾病的风险。然而,他们获得专门的心理和行为改变支持的机会有限。为了开发一种具有心理支持功能的数字干预措施,我们对成年人的皮肤状况的影响、管理和现有心理支持进行了定性研究,以获取相关信息。本研究采用了混合归纳演绎方法的定性研究。数据的收集和分析受到自我调节的常识模型的理论启发。通过同步在线小组访谈的方式对 43 名不同皮肤状况的成年英语使用者(≥18 岁)进行了研究。采用反思性主题分析方法对数据进行分析。结果确定了三个主要主题:(i)可见性导致生活轨迹受损,(ii)在不确定中寻求控制,以及(iii)现有的皮肤疾病支持。皮肤状况会给患者带来沉重的心理负担,但皮肤病学服务的提供并不理想,患者通常会寻求不可靠的来源来获得支持。心理支持可能会带来好处,但也存在障碍。这项研究强调了提供高质量心理支持的必要性,患者希望通过数字手段来支持有效的自我管理。

相似文献

本文引用的文献

9
Safeguarding online research integrity: concerns from recent experience.
Br J Dermatol. 2022 Dec;187(6):999-1000. doi: 10.1111/bjd.21765. Epub 2022 Aug 1.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验