Hewitt Rachael M, Dale Carys, Purcell Catherine, Pattinson Rachael, Bundy Chris
School of Healthcare Sciences, Cardiff University, Wales, UK.
School of Dentistry, Cardiff University, Wales, UK.
Br J Health Psychol. 2025 Feb;30(1):e12778. doi: 10.1111/bjhp.12778.
Skin conditions carry a substantial psychological burden but support for patients is limited. Digital technology could support patient self-management; we found preliminary evidence for the effectiveness and acceptability of digital psychological interventions for adults living with skin conditions. We have, therefore, developed a complex digital intervention called MiDerm with patients. This qualitative study explored the prospective acceptability of the complex intervention delivered via a smartphone application (app), and possible barriers and facilitators to use.
Qualitative research involving a hybrid inductive-deductive approach. Data collection and analysis were theoretically informed by The Common-Sense Model of Self-Regulation, Theoretical Framework of Acceptability and the Capability, Opportunity, Motivation - Behaviour Model.
Eight synchronous online group interviews with 43 English-speaking adults (≥ 18 years) with skin conditions. Data were analysed using Reflexive Thematic Analysis.
Three superordinate themes were generated: (1) Patients' attitudes and concerns about the MiDerm app; (2) Need for personal competence, autonomy and relatedness for effective self-management; and (3) Physical, psychological and social barriers to app use.
Adults with skin conditions, mainly those with vitiligo and psoriasis living in the UK, expressed the need for support to self-manage the psychological aspects of their condition(s). The idea of a new intervention comprised of informational, emotional, behavioural and peer support, delivered via a smartphone app was welcomed and may be especially beneficial for specific patients. Identified barriers must be addressed to maximize engagement and giving users choice, flexibility and control is imperative to this. We have since developed the MiDerm app using these findings.
皮肤疾病会带来沉重的心理负担,但对患者的支持却很有限。数字技术可以支持患者的自我管理;我们发现了数字心理干预对患有皮肤疾病的成年人的有效性和可接受性的初步证据。因此,我们与患者共同开发了一种名为MiDerm的复杂数字干预措施。这项定性研究探讨了通过智能手机应用程序(应用)提供的复杂干预措施的预期可接受性,以及使用的可能障碍和促进因素。
采用归纳-演绎混合方法的定性研究。数据收集和分析在理论上以自我调节常识模型、可接受性理论框架以及能力、机会、动机-行为模型为依据。
对43名患有皮肤疾病的英语成年使用者(≥18岁)进行了8次同步在线小组访谈。使用反思性主题分析法对数据进行分析。
产生了三个上级主题:(1)患者对MiDerm应用的态度和担忧;(2)有效自我管理对个人能力、自主性和关联性的需求;(3)应用使用的身体、心理和社会障碍。
患有皮肤疾病的成年人,主要是居住在英国的白癜风和牛皮癣患者,表示需要在自我管理病情的心理方面获得支持。通过智能手机应用程序提供的包含信息、情感、行为和同伴支持的新干预措施的想法受到欢迎,可能对特定患者特别有益。必须解决已识别的障碍,以最大限度地提高参与度,给予用户选择、灵活性和控制权对此至关重要。此后,我们根据这些发现开发了MiDerm应用程序。