Infectious Diseases Department, Centre Hospitalier Universitaire de Nice, Nice, France.
Public Health Department, Centre Hospitalier Universitaire de Nice, Nice, Provence-Alpes-Côte d'Azur, France.
BMJ Open. 2022 Nov 22;12(11):e062852. doi: 10.1136/bmjopen-2022-062852.
Recurring cystitis (RC) is a common complaint among women. It has a significant impact on patients' quality of life. The physical discomfort and psychological distress related to RC are rarely addressed and women's needs in terms of information and advice have not been sufficiently explored, particularly in France in spite of their frequent episodes of RC. This study aimed to assess women's needs and expectations in view of developing a patient information leaflet to help them understand and better cope with their condition, thus offering them more autonomy and empowering them to self-manage whenever possible.
Qualitative study using recorded semistructured interviews with patients suffering from RC.
Interviews conducted with women suffering from RC in Corsica, France.
26 patients interviewed between January 2018 and April 2018.
Knowledge of the condition was heterogeneous, but most women reported a major impact on daily life, a high level of anxiety, various management strategies and wished to avoid taking antibiotics, preferring alternative approaches. Patients reported a lack of understanding and sympathy on the part of physicians and society and wished for more autonomy with delayed/back-up prescriptions, a multidisciplinary follow-up and, most of all, appropriate information.
The information leaflet should improve patients' knowledge and capacity for self-care, contribute to standardise practice and limit inappropriate antibiotic use.
复发性膀胱炎（RC）是女性常见的疾病。它对患者的生活质量有重大影响。与 RC 相关的身体不适和心理困扰很少得到解决，女性对信息和建议的需求也没有得到充分探索，尤其是在法国，尽管她们经常发作 RC。本研究旨在评估女性的需求和期望，以便开发一份患者信息传单，帮助她们了解和更好地应对自身病情，从而为她们提供更多的自主权，并在可能的情况下帮助她们自我管理。
采用记录半结构化访谈的定性研究，对患有 RC 的患者进行访谈。
在法国科西嘉岛对患有 RC 的女性进行访谈。
2018 年 1 月至 2018 年 4 月期间，共访谈了 26 名患者。
患者对病情的了解程度各不相同，但大多数患者报告称对日常生活有重大影响，焦虑程度高，采用了各种管理策略，并希望避免服用抗生素，更倾向于替代方法。患者报告称，医生和社会缺乏理解和同情，希望获得更多自主权，包括延迟/备用处方、多学科随访，最重要的是获得适当的信息。
该信息传单应提高患者的知识水平和自我护理能力，有助于规范实践并限制不合理使用抗生素。
