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解释癌症患儿父母的精神调适过程:一项定性研究。

Explaining the Process of Spiritual Adjustment in Parents of a Child with Cancer: A Qualitative Study.

作者信息

Salawati Ghasemi Shahnaz, Bagheri-Saveh Mohammad Iraj, Shali Mahboubeh, Zakariaee Soma, Sheikh Zakaryaee Neda

机构信息

Department of Nursing, Faculty of Nursing and Midwifery, Kurdistan University of Medical Sciences, Sanandaj, Iran.

Critical Care Nursing, Nursing Management Department, Tehran University of Medical Sciences, Tehran, Iran.

出版信息

J Caring Sci. 2022 Oct 4;11(4):232-238. doi: 10.34172/jcs.2022.27. eCollection 2022 Oct.

Abstract

Having a child with cancer impacts the family members and reduces their quality of life. Considering the fact that spirituality creates tranquility, hope for the future, and acceptance of the disease, this study aimed to explain the process of spiritual care in parents of a child with cancer. This study was carried out using a qualitative method and grounded theory approach. The setting of this research was oncology and radiotherapy wards, governmental oncology clinics and pediatric hospitals. Using purposive and theoretical sampling method, 22 participants (eight mothers, three fathers with childhood cancer experience and 11 individuals working in oncology departments of different Iranian pediatric hospitals) were selected and individual and semi-structured interviews were conducted. The data analysis led to the creation of a core variable of "bridge towards spirituality" which included five main categories of "unstable situation", "spirituality," "crossing rocky path", "multi-dimensional support", and "rethink". Due to the significant impacts of a child's cancer on parents and the fact that people's spiritual needs increase in critical and stressful situations, paying attention to the spirituality process is essential for managing the conditions created by the child's disease and help parents through developing a comprehensive program of spiritual care in health care centers. Spiritual care is currently absent in the health care system of Iran, which necessitates attention to this issue in the parents of children with cancer.

摘要

孩子患癌症会对家庭成员产生影响并降低他们的生活质量。鉴于精神层面能带来安宁、对未来的希望以及对疾病的接纳,本研究旨在阐释对患癌孩子父母进行精神关怀的过程。本研究采用定性研究方法和扎根理论方法开展。研究场所为肿瘤与放疗病房、政府肿瘤诊所及儿童医院。运用目的抽样和理论抽样方法,选取了22名参与者(8名母亲、3名有孩子患癌经历的父亲以及11名在伊朗不同儿童医院肿瘤科工作的人员)并进行了个人及半结构化访谈。数据分析得出了“通向精神层面的桥梁”这一核心变量,其中包括“不稳定状况”“精神层面”“跨越艰难之路”“多维度支持”和“重新思考”五个主要类别。鉴于孩子患癌对父母有重大影响,且人们的精神需求在危急和压力情境下会增加,关注精神层面的过程对于应对孩子疾病所造成的状况至关重要,有助于通过在医疗保健中心制定全面的精神关怀计划来帮助父母。目前伊朗的医疗保健系统中缺乏精神关怀,这就需要关注患癌孩子父母的这一问题。

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