照顾者负担、心理困扰和头颈部癌症患者非正式照顾者的生活质量：一项纵向研究。
Caregiver Burden, Psychological Distress and Quality of Life among Informal Caregivers of Patients with Head and Neck Cancer: A Longitudinal Study.
机构信息
Department of Otorhinolaryngology and Head and Neck Surgery, Erasmus Cancer Institute, Erasmus University Medical Center, Dr. Molewaterplein 40, 3015 GD Rotterdam, The Netherlands.
Department of Otorhinolaryngology and Head and Neck Surgery, Cancer Center Amsterdam, Amsterdam UMC, Vrije Universiteit Amsterdam, De Boelelaan 1117, 1081 HV Amsterdam, The Netherlands.
出版信息
Int J Environ Res Public Health. 2022 Dec 5;19(23):16304. doi: 10.3390/ijerph192316304.
(1) Background: The aim of this study was to investigate caregiver burden among informal caregivers of head and neck cancer patients, in relation to distress and quality of life (QoL), and the relationship between informal caregivers and patients. (2) Methods: Data of 234 dyads from the multicenter prospective cohort study Netherlands Quality of life and Biomedical Cohort studies in cancer was used. Caregiver burden, psychological distress, global QoL, physical and social functioning were measured from baseline until 24 months after treatment. (4) Conclusions: This prospective cohort study shows the high burden of caring for HNC patients, the impact of this burden and the interaction between caregiver and patient. We suggest that healthcare professionals include caregivers in counseling and support.
(1) 背景：本研究旨在调查头颈部癌症患者的非正式照顾者的照顾者负担，以及与痛苦和生活质量（QoL）的关系，以及照顾者和患者之间的关系。
(2) 方法：使用来自多中心前瞻性队列研究荷兰生活质量和癌症生物医学队列研究的 234 对数据。从基线到治疗后 24 个月测量照顾者负担、心理困扰、整体生活质量、身体和社会功能。
(4) 结论：这项前瞻性队列研究显示了照顾头颈部癌症患者的高负担、这种负担的影响以及照顾者和患者之间的相互作用。我们建议医疗保健专业人员将照顾者纳入咨询和支持中。
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