Spain Debbie, Mason David, J Capp Simone, Stoppelbein Laura, W White Susan, Happé Francesca
Institute of Psychiatry, Psychology & Neuroscience, King's College London, United Kingdom.
South London & Maudsley NHS Foundation Trust, United Kingdom.
Res Autism Spectr Disord. 2021 May;83:101747. doi: 10.1016/j.rasd.2021.101747. Epub 2021 Mar 6.
The COVID-19 (C-19) pandemic affects everyone. Autistic individuals may be at increased risk of experiencing difficulties coping with the impact of C-19 (e.g. due to unexpected changes to usual activities and routines, and the general sense of uncertainty). This preliminary study gathered the perspectives of health and social care professionals, and researchers, about: (1) vulnerability factors for coping with the pandemic; (2) the impact of the pandemic; (3) service provision during the pandemic; and (4) interventions to support reintegration during and post the pandemic.
We conducted an online survey, comprising Likert-scale and free text responses. Quantitative data were analysed descriptively, and qualitative data thematically.
Thirty-seven participants, working in clinical, education and academic settings with autistic individuals, completed the survey. C-19 had substantially impacted service provision, causing major disruption or loss of services. Thematic analysis indicated six overarching themes: (1) vulnerability factors for coping with C-19 and lockdown; (2) positive and negative impact of lockdown (for autistic individuals, families and professionals); (3) public health response to C-19; (4) service provision during the pandemic; (5) inequalities; and (6) looking to the future.
Professionals, across disciplines and settings, must now work together with autistic individuals and their families, to understand the impact of these extraordinary circumstances and develop ways everyone can be supported more effectively.
2019冠状病毒病(COVID-19)大流行影响着每一个人。自闭症患者应对COVID-19影响(例如,由于日常活动和常规的意外变化以及普遍的不确定感)时可能面临更多困难。这项初步研究收集了卫生和社会护理专业人员以及研究人员关于以下方面的观点:(1)应对大流行的脆弱因素;(2)大流行的影响;(3)大流行期间的服务提供;(4)在大流行期间及之后支持重新融入的干预措施。
我们进行了一项在线调查,包括李克特量表和自由文本回复。对定量数据进行描述性分析,对定性数据进行主题分析。
37名在临床、教育和学术环境中与自闭症患者打交道的参与者完成了调查。COVID-19对服务提供产生了重大影响,导致服务严重中断或丧失。主题分析表明有六个总体主题:(1)应对COVID-19和封锁的脆弱因素;(2)封锁的积极和消极影响(对自闭症患者、家庭和专业人员而言);(3)对COVID-19的公共卫生应对措施;(4)大流行期间的服务提供;(5)不平等;(6)展望未来。
现在,跨学科和跨环境的专业人员必须与自闭症患者及其家庭合作,以了解这些特殊情况的影响,并制定能更有效地支持每个人的方法。