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在新冠疫情封锁期间使用混合远程医疗服务支持自闭症谱系障碍儿童的家长:伊朗的一项可行性研究

Using Hybrid Telepractice for Supporting Parents of Children with ASD during the COVID-19 Lockdown: A Feasibility Study in Iran.

作者信息

Samadi Sayyed Ali, Bakhshalizadeh-Moradi Shahnaz, Khandani Fatemeh, Foladgar Mehdi, Poursaid-Mohammad Maryam, McConkey Roy

机构信息

Institute of Nursing Research, University of Ulster, Newtownabbey BT37 0QB, UK.

Raha Autism Education and Rehabilitation Center, Tabriz 51368, Iran.

出版信息

Brain Sci. 2020 Nov 22;10(11):892. doi: 10.3390/brainsci10110892.

Abstract

During the three-month closure of clinics and day centers in Iran due to the coronavirus disease 2019 (COVID-19) lockdown, parents of children with Autism Spectrum Disorder (ASD) became solely responsible for their care and education. Although centers maintained telephone contact, it quickly became evident that parents needed more detailed advice and guidance. Staff from 30 daycare centers volunteered to take part in a two-month online support and training course for 336 caregivers of children with ASD of different ages. In addition to the provision of visual and written information, synchronous video sessions were used to coach parents on the learning goals devised for the children. Both qualitative and quantitative data were collected to understand the acceptability of using telepractice and the outcomes achieved. A low dropout rate and positive feedback from parents indicated that they perceived telepractice sessions to be useful. The factors contributing to parents' satisfaction were identified. Although the use of telepractice would be a good alternative for caregivers in any future lockdowns, it could also be used in conjunction with daycare center services to encourage greater parental participation, or with families living in areas with no day centers. Further studies are needed to compare telepractice to usual daycare face-to-face interventions, and to document its impact and cost-effectiveness for parents and children.

摘要

在伊朗因2019冠状病毒病(COVID-19)封锁而导致诊所和日间护理中心关闭的三个月期间,自闭症谱系障碍(ASD)儿童的家长独自负责孩子的照料和教育。尽管各中心保持了电话联系,但很快就发现家长们需要更详细的建议和指导。来自30个日托中心的工作人员自愿参加了一个为期两个月的在线支持和培训课程,该课程面向336名不同年龄段ASD儿童的照料者。除了提供视觉和书面信息外,还通过同步视频会议指导家长如何实现为孩子设定的学习目标。收集了定性和定量数据,以了解远程医疗实践的可接受性和取得的成果。低辍学率和家长的积极反馈表明,他们认为远程医疗实践课程很有用。确定了促使家长满意的因素。尽管在未来的任何封锁期间,远程医疗实践对照料者来说都是一个很好的选择,但它也可以与日托中心服务结合使用,以鼓励家长更多地参与,或者与居住在没有日托中心地区的家庭一起使用。需要进一步研究,将远程医疗实践与常规日托面对面干预进行比较,并记录其对家长和孩子的影响及成本效益。

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