Yıldırım Süleyman, Kazaz Seher Nazlı, Semiz Hüseyin Salih, Yavuzşen Tuğba, Somalı Işıl, Ellidokuz Hülya, Öztop İlhan
Dr. Suat Seren Chest Diseases and Thoracic Surgery Training and Research Hospital, Izmir, Turkey.
Department of Medical Oncology, Kanuni Training and Research Hospital, Trabzon, Turkey.
J Cancer Educ. 2019 Oct;34(5):913-919. doi: 10.1007/s13187-018-1395-8.
Patients followed up with a cancer diagnosis must be well-informed about cancer to be able to cope with it. Besides, informing the relatives of the cancer patients who are also experiencing the same process about the diagnosis and follow-up period of cancer is highly important. In the current study, it was aimed to evaluate the information sources about cancer which are referred to by relatives of cancer patients. Three hundred ninety-one cancer patient relatives were included in medical oncology clinic between May 1 and June 30, 2015. A questionnaire was applied to the participants, comprising 12 questions to elicit demographic information and 11 questions about the information sources to which they referred. The study included 183 female and 208 male participants with a mean age of 47.9 ± 13.6 years. While the oncologists were the primary information sources referred to by 87%, the Internet was the second most preferred information source by 72%. The websites most frequently referred were the official websites (70%), the websites of oncology associations (53%), and social networks and forums (32%). The primary factors affecting the Internet preference were age, education level, income level, and place of residence. The Internet was the second most referred information source about cancer by family caregivers following oncologists. Therefore, it is of crucial importance that physicians inform patients and their relatives comprehensively as well as guiding them to correct and reliable information sources.
被诊断患有癌症的患者必须充分了解癌症，以便能够应对它。此外，告知同样正在经历这一过程的癌症患者亲属有关癌症的诊断和随访期非常重要。在当前的研究中，旨在评估癌症患者亲属提及的有关癌症的信息来源。2015年5月1日至6月30日期间，391名癌症患者亲属被纳入肿瘤内科门诊。向参与者发放了一份问卷，包括12个用于获取人口统计学信息的问题和11个关于他们所提及的信息来源的问题。该研究包括183名女性和208名男性参与者，平均年龄为47.9±13.6岁。虽然87%的人提及肿瘤学家是主要信息来源，但72%的人将互联网作为第二大首选信息来源。最常被提及的网站是官方网站（70%）、肿瘤学协会网站（53%）以及社交网络和论坛（32%）。影响互联网偏好的主要因素是年龄、教育水平、收入水平和居住地点。互联网是家庭照顾者继肿瘤学家之后提及的第二大有关癌症的信息来源。因此，医生全面告知患者及其亲属，并引导他们获取正确和可靠的信息来源至关重要。
