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自闭症儿童父母之间的亲职间支持:文献综述。

Parent-to-parent support among parents of children with autism: A review of the literature.

机构信息

University of Washington, USA.

University of Illinois Urbana-Champaign, USA.

出版信息

Autism. 2024 Feb;28(2):263-275. doi: 10.1177/13623613221146444. Epub 2023 Jan 1.

DOI:10.1177/13623613221146444
PMID:36588317
Abstract

Parents of autistic children have long reported feelings of isolation and increased stress during and after receiving their child's diagnosis. Increasing global prevalence of autism also calls for increased services and supports to meet the needs of these families, but most parents who live in low-resource settings still report exacerbated barriers. This may indicate the need for diversifying intervention delivery models to increase contextual fit and enhance implementation effects for different populations. For example, many parents have reported parent-to-parent (P2P) model to be a source of emotional support, advocacy, and knowledge related to their child's diagnosis, and practical advice. However, little is known about this topic due to the lack of synthesis of relevant autism literature. To address this gap, we conducted a literature review to gain a deeper understanding of how P2P support is used. We identified 25 studies based on our inclusion and exclusion criteria, which we coded to extract variables such as demographic information of participants, types of P2P, dosage, target outcomes, and social validity. About half of studies focused on providing support groups for parents, and the other half focused on individual matching and mentoring for skill acquisition of parents. Across the included 25 studies, a total of 141 parents participated as parent mentors and 747 parents as parent mentees. We also present implications for future research.

摘要

自闭症儿童的家长长期以来一直报告说,在孩子被诊断出自闭症后,他们感到孤立无援,压力增加。自闭症在全球的发病率不断上升,也需要增加服务和支持,以满足这些家庭的需求,但大多数生活在资源匮乏环境中的家长仍报告说障碍加剧。这可能表明需要使干预提供模式多样化,以增加对不同人群的环境适应性并提高实施效果。例如,许多家长报告说,父母对父母(P2P)模式是他们获得与孩子诊断相关的情感支持、倡导和知识以及实际建议的来源。然而,由于缺乏对相关自闭症文献的综合研究,人们对此知之甚少。为了解决这一差距,我们进行了文献综述,以更深入地了解 P2P 支持是如何使用的。我们根据纳入和排除标准确定了 25 项研究,并对其进行了编码,以提取参与者的人口统计学信息、P2P 的类型、剂量、目标结果和社会有效性等变量。大约一半的研究侧重于为家长提供支持小组,另一半则侧重于为家长提供个人匹配和指导,以获取技能。在包括的 25 项研究中,共有 141 名家长作为家长导师参与,747 名家长作为家长学员参与。我们还介绍了对未来研究的启示。

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