Wang Zhong, Guo Yujun, Xu Rui
School of Economics, Guangdong University of Technology, Guangzhou 510520, China.
Key Laboratory of Digital Economy and Data Governance, Guangdong University of Technology, Guangzhou 510520, China.
Healthcare (Basel). 2023 Jan 8;11(2):188. doi: 10.3390/healthcare11020188.
As genetic testing is increasingly used in non-medical fields, the judgment of people's potential conditions based on predictive genetic information inevitably causes genetic discrimination (henceforth GD). This article aimed to systematically investigate the disparity in attitudes and worrying scenarios concerning GD in China. A questionnaire survey of 555 respondents was conducted. Statistical tests were used to examine disparity in attitudes between gender, age, and education. A descriptive analysis was also conducted to explore other worrying scenarios. It shows that (1) men are more tolerant of GD compared to women, and (2) participants aged between 18 and 30 years old possess the highest objection to GD. However, (3) no indication can attest to the relationship between educational level and perspective on GD. In addition, (4) the acceptance of gene testing in the three most common scenarios is ranked in descending order as follows: partner choice, insurance services, and recruitment. Moreover, (5) worrying scenarios relating to GD include: education, social occasions, medical services, fertility, shopping, and so on. Based on the results, suggestions proposed include developing a blacklist mechanism in the field of genetic data application and strengthening the security regulations for the commercial use of genetic data.
随着基因检测在非医学领域的应用日益广泛，基于预测性基因信息对人们潜在状况进行判断不可避免地会导致基因歧视（以下简称GD）。本文旨在系统调查中国在GD态度及令人担忧的情形方面的差异。对555名受访者进行了问卷调查。使用统计检验来考察性别、年龄和教育程度在态度上的差异。还进行了描述性分析以探究其他令人担忧的情形。结果表明：（1）与女性相比，男性对GD的容忍度更高；（2）18至30岁的参与者对GD的反对最为强烈。然而，（3）没有迹象能证明教育程度与对GD的看法之间存在关联。此外，（4）在三种最常见情形下对基因检测的接受程度由高到低依次为：伴侣选择、保险服务和招聘。而且，（5）与GD相关的令人担忧的情形包括：教育、社交场合、医疗服务、生育、购物等等。基于这些结果，提出的建议包括在基因数据应用领域建立黑名单机制以及加强基因数据商业使用的安全规定。
