Mental Health Research Group, Division of Nursing, Midwifery and Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science Centre, University of Manchester, Manchester, UK; Department of Clinical, Education & Health Psychology, University College London, London, UK.
University of Manchester, Manchester, UK.
Lancet Psychiatry. 2023 Mar;10(3):220-227. doi: 10.1016/S2215-0366(22)00430-8. Epub 2023 Jan 22.
The importance of patient and public involvement (PPI) in mental health research is increasingly acknowledged by funders, researchers, and patients. However, the impact of PPI on those who bring their own lived experiences to research environments is underexplored. A retrospective reflective approach was undertaken collaboratively by four people bringing lived experiences of mental health difficulties to a study adapting a social network intervention for mental health services. Authors considered their experiences of involvement and how these affected them personally. We identified six characteristics of involvement that benefit not only research quality, but also people participating in PPI activities: reframing painful memories, recognising value, practising reciprocity, bridging gaps, countering stigma, and challenging established narratives. When designing and conducting research, it is important to engage empathetically with how involvement is experienced by different people. Values should be translated collaboratively into action so that unintended harms might be avoided. This Personal View offers reflections and recommendations to support this process.
患者和公众参与（PPI）在精神健康研究中的重要性越来越受到资助者、研究人员和患者的认可。然而，PPI 对那些将自己的生活经历带入研究环境的人所产生的影响还没有得到充分的探索。四个人共同采用回顾性反思方法，将精神健康困难的生活经验带到一项研究中，该研究旨在为精神卫生服务改编社会网络干预措施。作者们考虑了他们参与的经历以及这些经历如何对他们个人产生影响。我们确定了参与的六个特征，这些特征不仅有益于研究质量，也有益于参与 PPI 活动的人：重新构建痛苦的记忆、认识到价值、实践互惠、弥合差距、消除污名化和挑战既定叙事。在设计和进行研究时，重要的是要设身处地地理解不同人参与的体验。价值观应该共同转化为行动，以避免意外的伤害。本个人观点提供了反思和建议，以支持这一过程。
