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增强具有实践经验的年轻人的研究参与度:反思数字心理健康研究中的经验。

Enhancing Research Involvement of Young People With Lived Expertise: Reflecting on Experiences in Digital Mental Health Research.

机构信息

Brain and Mind Centre, The University of Sydney, Camperdown, NSW, Australia.

出版信息

J Med Internet Res. 2024 Oct 18;26:e55441. doi: 10.2196/55441.

DOI:10.2196/55441
PMID:39423372
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11530728/
Abstract

Given the rapid development of digital mental health technologies and a focus on connecting with youth, there is an urgent need to enhance the engagement of young people with lived expertise in research. Even so, youth with lived experience of accessing mental health services are particularly affected by power imbalances and may receive limited compensation in academic settings. Therefore, an emphasis on how research engagement not only improves the work but can benefit young people themselves is required. Here, 5 young people with lived expertise report on their experience of being employed as researchers at the University of Sydney's Brain and Mind Centre. As such, this team is uniquely placed to offer reflections from their work across multiple stages of research. This led to four key insights, including (1) creating accepting work cultures, (2) providing diverse opportunities for involvement, (3) giving young people agency and flexibility around sharing lived experiences, and (4) creating accommodating work environments for all researchers. We suggest that these insights can support more diverse ways of engaging young people and maximizing the value of participation for both researchers and young people themselves.

摘要

鉴于数字心理健康技术的快速发展和关注与年轻人建立联系,迫切需要增强具有生活经验的年轻人在研究中的参与度。即便如此,有过获取心理健康服务经历的年轻人特别受到权力失衡的影响,在学术环境中可能获得的补偿有限。因此,需要强调研究参与不仅可以提高工作质量,还可以使年轻人自己受益。在这里,5 名具有生活经验的年轻人报告了他们在悉尼大学脑与心智中心担任研究人员的经历。因此,该团队能够从研究的多个阶段提供工作反思。这产生了四个关键见解,包括 (1) 创建接受的工作文化,(2) 为参与提供多样化的机会,(3) 让年轻人在分享生活经验方面拥有自主权和灵活性,以及 (4) 为所有研究人员创造包容的工作环境。我们认为,这些见解可以支持更具多样性的方式来吸引年轻人,并使研究人员和年轻人自身都能最大限度地发挥参与的价值。

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本文引用的文献

1
Youth Perspectives on 'Highly Personalised and Measurement-Based Care': Qualitative Co-Design of Education Materials.青年视角下的“高度个性化和基于测量的医疗照护”:教育材料的定性协同设计。
Health Expect. 2024 Aug;27(4):e14137. doi: 10.1111/hex.14137.
2
Reporting lived experience work.报告生活经历工作。
Lancet Psychiatry. 2024 Jan;11(1):8-9. doi: 10.1016/S2215-0366(23)00402-9.
3
EMPOWERED trial: protocol for a randomised control trial of digitally supported, highly personalised and measurement-based care to improve functional outcomes in young people with mood disorders.EMPOWERED 试验:一项随机对照试验的方案,旨在通过数字化支持、高度个性化和基于测量的护理来改善年轻人情绪障碍的功能结果。
BMJ Open. 2023 Oct 11;13(10):e072082. doi: 10.1136/bmjopen-2023-072082.
4
Lived, loved, laboured, and learned: experience in youth mental health research.生活、热爱、劳作与学习:青年心理健康研究中的经历
Lancet Psychiatry. 2023 Dec;10(12):916-918. doi: 10.1016/S2215-0366(23)00270-5. Epub 2023 Aug 22.
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Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research.研究伙伴关系中的角色、成果与促进因素:关于患者及公众参与健康研究的文献快速综述
Res Involv Engagem. 2023 Jun 15;9(1):43. doi: 10.1186/s40900-023-00448-z.
6
Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.探索参与精神健康和物质使用研究的影响:范围综述和主题分析。
Health Expect. 2023 Oct;26(5):1806-1819. doi: 10.1111/hex.13779. Epub 2023 Jun 6.
7
Strengthening mental health research outcomes through genuine partnerships with young people with lived or living experience: A pilot evaluation study.通过与有过或正在经历精神健康问题的年轻人建立真正的伙伴关系,加强精神健康研究成果:一项试点评估研究。
Health Expect. 2023 Aug;26(4):1703-1715. doi: 10.1111/hex.13777. Epub 2023 May 17.
8
Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.有过精神健康和物质使用经历的人群参与心理健康和物质使用研究的研究证据与实施差距:一项范围综述
Res Involv Engagem. 2023 May 11;9(1):32. doi: 10.1186/s40900-023-00442-5.
9
Creating positive experiences of involvement in mental health research.创造积极的心理健康研究参与体验。
Lancet Psychiatry. 2023 Mar;10(3):220-227. doi: 10.1016/S2215-0366(22)00430-8. Epub 2023 Jan 22.
10
Youth engagement in mental health research: A systematic review.青年参与精神健康研究:系统评价。
Health Expect. 2023 Feb;26(1):30-50. doi: 10.1111/hex.13650. Epub 2022 Nov 16.