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倾听患者的声音:行走体验的概念框架。

Listening to the patients' voice: a conceptual framework of the walking experience.

机构信息

Non-communicable diseases and Environment Programme, ISGlobal, Barcelona, NE4 5PL, Spain.

Department of Medicine and Life Sciences, Universitat Pompeu Fabra, Barcelona, NE4 5PL, Spain.

出版信息

Age Ageing. 2023 Jan 8;52(1). doi: 10.1093/ageing/afac233.

Abstract

BACKGROUND

walking is crucial for an active and healthy ageing, but the perspectives of individuals living with walking impairment are still poorly understood.

OBJECTIVES

to identify and synthesise evidence describing walking as experienced by adults living with mobility-impairing health conditions and to propose an empirical conceptual framework of walking experience.

METHODS

we performed a systematic review and meta-ethnography of qualitative evidence, searching seven electronic databases for records that explored personal experiences of walking in individuals living with conditions of diverse aetiology. Conditions included Parkinson's disease, multiple sclerosis, chronic obstructive pulmonary disease, hip fracture, heart failure, frailty and sarcopenia. Data were extracted, critically appraised using the NICE quality checklist and synthesised using standardised best practices.

RESULTS

from 2,552 unique records, 117 were eligible. Walking experience was similar across conditions and described by seven themes: (i) becoming aware of the personal walking experience, (ii) the walking experience as a link between individuals' activities and sense of self, (iii) the physical walking experience, (iv) the mental and emotional walking experience, (v) the social walking experience, (vi) the context of the walking experience and (vii) behavioural and attitudinal adaptations resulting from the walking experience. We propose a novel conceptual framework that visually represents the walking experience, informed by the interplay between these themes.

CONCLUSION

a multi-faceted and dynamic experience of walking was common across health conditions. Our conceptual framework of the walking experience provides a novel theoretical structure for patient-centred clinical practice, research and public health.

摘要

背景

行走对于积极健康的老龄化至关重要,但行动不便者的观点仍未得到充分理解。

目的

确定并综合描述患有行动障碍的成年人对行走体验的证据,并提出行走体验的经验概念框架。

方法

我们对定性证据进行了系统综述和元分析,在七个电子数据库中搜索了探索不同病因患者行走体验的记录。所包括的疾病有帕金森病、多发性硬化症、慢性阻塞性肺疾病、髋部骨折、心力衰竭、虚弱和肌肉减少症。提取数据,使用 NICE 质量检查表进行批判性评估,并使用标准化最佳实践进行综合。

结果

从 2552 条独特的记录中,有 117 条符合条件。行走体验在不同疾病之间相似,由七个主题描述:(i)意识到个人的行走体验,(ii)行走体验作为个体活动和自我意识之间的联系,(iii)身体的行走体验,(iv)精神和情感的行走体验,(v)社会的行走体验,(vi)行走体验的背景,(vii)行走体验导致的行为和态度的适应。我们提出了一个新的概念框架,该框架通过这些主题的相互作用来直观地表示行走体验。

结论

在各种健康状况下,行走体验是多方面的、动态的。我们的行走体验概念框架为以患者为中心的临床实践、研究和公共卫生提供了新的理论结构。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0cd6/9894103/7c1499bb3bf4/afac233f1.jpg

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