Graduate School of Nursing, Chiba University, Chiba, Japan.
JBI Evid Synth. 2023 Feb 1;21(2):441-448. doi: 10.11124/JBIES-22-00107.
This review aims to synthesize advance care planning experiences of patients with heart failure at stage C or D, and the experiences of their families.
The high incidence rates worldwide and the health burdens associated with heart failure indicate a need to implement end-of-life care for people with cardiovascular disease. Advance care planning is a core process in effective end-of-life cardiovascular care. Since the trajectory of heart failure is unique, it is necessary to establish patient-specific interventions focusing on their experiences, and develop effective advance care planning interventions. However, no previously published systematic reviews have integrated knowledge of the patient's or the family's experience. Therefore, more comprehensive analyses of the experiences of patients with heart failure and their families are required to conduct better interventions.
This review will consider qualitative studies on the experiences of adult patients with stage C or D heart failure who participated in advance care planning, and the experiences of their families. Studies conducted in all settings that accommodate patients with heart failure will be considered.
PubMed, CINAHL, Web of Science, Science Direct, Cochrane Central Register of Controlled Trials, PsycINFO, ProQuest Dissertations and Theses Global, Google Scholar, and gray literature will be searched for articles that meet the inclusion criteria. Studies published in English from the inception of the database to the present will be considered. Eligible studies will be critically appraised using standardized JBI tools for qualitative synthesis. The findings will be pooled using a meta-aggregation approach. The final synthesized findings will be assessed according to the ConQual approach to establish confidence in qualitative research synthesis.
PROSPERO CRD42021229096.
本综述旨在综合心力衰竭 C 期或 D 期患者及其家属的预先医疗照护计划体验。
全球发病率高，心力衰竭相关健康负担重，这表明需要为心血管疾病患者实施临终关怀。预先医疗照护计划是有效心血管疾病临终关怀的核心过程。由于心力衰竭的轨迹是独特的，有必要针对患者的具体情况制定干预措施，开发有效的预先医疗照护计划干预措施。然而，以前没有发表过的系统评价整合了患者或其家属体验的知识。因此，需要更全面地分析心力衰竭患者及其家属的体验，以进行更好的干预。
本综述将考虑关于参与预先医疗照护计划的 C 期或 D 期心力衰竭成年患者及其家属体验的定性研究。将考虑在所有适合心力衰竭患者的环境中进行的研究。
将在 PubMed、CINAHL、Web of Science、Science Direct、Cochrane 中央对照试验注册中心、PsycINFO、ProQuest 学位论文和全球学位论文、Google Scholar 和灰色文献中搜索符合纳入标准的文章。将考虑从数据库建立到现在以英文发表的研究。使用 JBI 定性综合标准化工具对合格研究进行批判性评估。将使用荟萃聚合方法汇总研究结果。根据 ConQual 方法评估最终综合研究结果，以确定定性研究综合的可信度。
PROSPERO CRD42021229096。
