Department of Neurobiology, Care Sciences and Society, Division of Clinical Geriatrics, 27106Karolinska Institutet, Sweden; Theme Inflammation and Aging, Karolinska University Hospital, Sweden.
Department of Neurobiology, Care Sciences and Society, Division of Clinical Geriatrics, 27106Karolinska Institutet, Sweden; Department of Medical Psychology, 522567Amsterdam University Medical Center, University of Amsterdam, The Netherlands.
Dementia (London). 2023 Apr;22(3):610-627. doi: 10.1177/14713012231155516. Epub 2023 Feb 2.
Receiving a diagnosis of dementia before the age of 65 has a huge impact on everyday life. Previously, the disease trajectory has mainly been described from the perspective of older persons. However, young persons with dementia are confronted with specific challenges, influencing the type of life-changing events, or 'critical points' that they may experience. The aim of this study was therefore to describe experiences of persons recently being diagnosed with young-onset dementia. In total, 14 participants with dementia due to Alzheimer's disease (10 woman/4 men) with an average age of 59 were included in the study. Interviews were conducted within 2 months after receiving the diagnosis and analyzed using qualitative content analysis with an inductive approach, resulting in three categories: (1) , (2) and (3) The findings show that receiving such a diagnosis was experienced by participants as a life changing moment, followed by them seeking to come to terms with the diagnosis and reflecting on its meaning, in which various strategies were adopted to remain in control. The current study highlights three critical points considering the diagnosis of young-onset dementia that warrant special attention and provides insight into factors related to delay in healthy transitioning after receiving the diagnosis, as well as factors that may facilitate successful transitions.
在 65 岁之前被诊断患有痴呆症会对日常生活产生巨大影响。以前，疾病轨迹主要是从老年人的角度来描述的。然而，患有痴呆症的年轻人面临着特定的挑战，影响了他们可能经历的改变生活的事件或“关键点”的类型。因此，本研究旨在描述最近被诊断为早发性痴呆症的人的经历。共有 14 名患有阿尔茨海默病导致的痴呆症的参与者（10 名女性/4 名男性）被纳入研究，平均年龄为 59 岁。访谈是在诊断后 2 个月内进行的，并采用归纳法的定性内容分析法进行分析，得出三个类别：(1) ，(2) ，(3) 。研究结果表明，参与者将这种诊断视为改变生活的时刻，随后他们试图接受诊断并反思其意义，在此过程中采用了各种策略来保持控制。本研究强调了三个与早发性痴呆症诊断相关的关键点，需要特别关注，并深入了解与诊断后健康过渡延迟相关的因素，以及可能促进成功过渡的因素。
