Institute of Health and Society (IRSS), Université Catholique de Louvain, Brussels, Belgium.
Psychological Science Research Institute (IPSY), Université Catholique de Louvain, Louvain-la-Neuve, Belgium.
Child Care Health Dev. 2022 Mar;48(2):203-216. doi: 10.1111/cch.12937. Epub 2021 Dec 21.
Since the Convention on the Rights of the Child in 1989, interest in the ethical and methodological challenges involved in conducting research with children has increased considerably. Researchers who work with children have to take into account children's intrinsic physical, mental and emotional vulnerability as well as their interdependence with other family members, particularly their parents. This is especially challenging in research that seeks to explore children's lived experience in relation to aspects of their family lives.
We aimed to identify specific ethical issues and ways of overcoming challenges in conducting research with children on some aspects of their family lives.
We conducted a scoping review according to the PRISMA Extension for Scoping Reviews Checklist. Seventeen publications were selected for data extraction and synthesis, 4 of which were original studies and 13 reflexive papers.
Our results confirm that a research project that asks children about aspects of their family lives leads to a number of ethical tensions: While children depend on their parents and family to ensure that their safety and physical needs are met, they also greatly contribute to the development of family dynamics. We highlight methodological strategies that allow researchers to mitigate the ethical challenges that are inherent to this type of research.
DISCUSSION/CONCLUSION: A promising approach is to use participative methods at each stage of research, including developing a trusting and triadic partnership that includes parents, children, a multidisciplinary research team and professional gatekeepers. Benefits as well as possible risks for participants should also be considered when children and their parents are engaged in a study.
自 1989 年《儿童权利公约》通过以来，人们对涉及儿童研究的伦理和方法挑战的兴趣大大增加。研究儿童的研究人员必须考虑到儿童内在的身体、心理和情感脆弱性，以及他们与其他家庭成员的相互依存关系，特别是他们的父母。在研究中，当研究旨在探索儿童与其家庭生活方面的生活体验时，这尤其具有挑战性。
我们旨在确定在研究儿童家庭生活的某些方面时，涉及的具体伦理问题和克服挑战的方法。
我们根据 PRISMA 扩展清单进行了范围综述。选择了 17 篇出版物进行数据提取和综合，其中 4 篇是原始研究，13 篇是反思性论文。
我们的研究结果证实，一项要求儿童了解其家庭生活方面的研究项目会引发一些伦理紧张局势：虽然儿童依赖其父母和家庭来确保其安全和身体需求得到满足，但他们也极大地促进了家庭动态的发展。我们强调了一些方法策略，这些策略可以让研究人员减轻这种类型的研究中固有的伦理挑战。
讨论/结论：一种有前途的方法是在研究的每个阶段使用参与式方法，包括建立信任和三方合作伙伴关系，其中包括父母、儿童、多学科研究团队和专业监护人。在儿童及其父母参与研究时，还应考虑到参与者的利益和可能的风险。
