Centro Universitário Da Faculdade De Medicina Do Abc Paulista, São Paulo, Brazil.
Universidade de Pernambuco, Recife, Brazil.
PeerJ. 2023 Feb 2;11:e14807. doi: 10.7717/peerj.14807. eCollection 2023.
With the increase in cases of microcephaly caused by the Zika virus, the demand for special care and a better quality of life for the child and caregiver increased proportionally.
This study aimed to analyze the burden on caregivers of children with congenital Zika syndrome associated with viral infections in the state of Pernambuco, Brazil using the Zarit Burden interview scale.
A quantitative study was conducted at the Oswaldo Cruz University Hospital, Recife City, State of Pernambuco, Brazil. By convenience sampling, 56 mothers, two grandmothers, and two caregivers were enrolled, all are female. Data were collected from July 2019 to January 2020. In the analysis, the percentage frequencies were calculated. The normality was identified using the Kolmogorov-Smirnov test, and participant profiles were compared using Student's -test and analysis of variance. In descriptive statistics, quantitative variables are described by the median and interquartile range and categorical variables by proportions using the Chi-square test.
In the comparative analysis, all factors evaluated were significant, except for the "gestational period in which the disease occurred" ( < 0.111). The significance of differences in all activities was evaluated. In the mean comparison test, only the factor "has a job" was significant ( < 0.043). When comparing the average of caregivers' responses to the categories of the Zarit burden interview scale, the highest level of burden was regarding the feeling that the child is dependent on the caregiver (3.62 points). Caregiver burden was classified as absence, light, moderate, and high.
The consequences of contracting the Zika virus in the first trimester of pregnancy, lack of paid work, financial scarcity, full-time dedication to the child, and lack of time for themselves increase the burden on caregivers. Thus, caregivers have mild burden.
寨卡病毒引起的小头症病例不断增加，因此儿童及其照护者对特殊护理和更高生活质量的需求也相应增加。
本研究旨在使用 Zarit 负担量表分析巴西伯南布哥州与寨卡病毒感染相关的先天性寨卡综合征患儿照护者的负担。
本研究为在巴西伯南布哥州累西腓市奥古斯托·克鲁兹大学医院进行的一项定量研究。通过便利抽样，纳入了 56 名母亲、2 名祖母和 2 名照顾者，均为女性。数据收集于 2019 年 7 月至 2020 年 1 月期间。在分析中，计算了百分比频率。使用 Kolmogorov-Smirnov 检验确定了正态性，使用 Student's t 检验和方差分析比较了参与者的特征。在描述性统计中，定量变量采用中位数和四分位距表示，分类变量采用比例表示，并使用卡方检验进行比较。
在比较分析中，除了“疾病发生的妊娠时期”（<0.111）外，所有评估的因素均具有统计学意义。对所有活动的差异显著性进行了评估。在均值比较检验中，只有“有工作”这一因素具有统计学意义（<0.043）。当比较照护者对 Zarit 负担量表各分类的平均应答时，对儿童依赖照护者的感受的负担程度最高（3.62 分）。照护者负担程度分为无、轻度、中度和重度。
妊娠早期感染寨卡病毒、无带薪工作、经济拮据、全职照顾孩子以及缺乏自我时间等后果增加了照护者的负担。因此，照护者的负担较轻。
