Faculty of Life Sciences and Education, University of South Wales, Pontypridd, Wales, UK.
Health Expect. 2023 Jun;26(3):1065-1080. doi: 10.1111/hex.13720. Epub 2023 Feb 9.
Breast screening is an effective way to improve the early detection of breast cancer and reduce mortality. Unfortunately, low uptake of screening is often reported. This study aimed to explore the support needs of women residing in Newport West, Wales, to participate in breast screening.
Group Concept Mapping, a structured participatory consensus approach, was used as the method. Participants completed three activities either online or offline: brainstorming to generate statements, sorting statements into themed categories; rating statements for perceived importance and accessibility (easy to get).
Thirty-seven participants from seven ethnic groups took part. Sixty-three statements (items of support) were generated and sorted into seven conceptually similar clusters (themes) (Trusting that I will be respected; Reassurance about my experience; Accessibility and convenience; Practical support; Addressing cultural diversity; Information tailored to individual needs; Raising awareness and understanding of breast screening). The 'Trusting that I will be respected' cluster was rated most important, while the 'Practical support' cluster was rated least accessible. Some disparity between responses was found based on ethnicity, language, disability and previous attendance of breast screening.
Women require a range of support to participate in breast screening. The results highlight the importance of ensuring women feel and are respected, instilling trust in the staff performing the screening, offering reassurance about positive experiences of breast screening and providing practical support, especially individualized/targeted support for people who do not speak and/or read English and those with a disability.
The public contributed to the development of the information sheet, consent form, recruitment and data collection method.
乳腺筛查是提高乳腺癌早期检出率、降低死亡率的有效方法。但遗憾的是,乳腺筛查的参与率往往较低。本研究旨在探讨居住在威尔士新港西部的女性参与乳腺筛查的支持需求。
采用群组概念映射法,这是一种结构化的参与式共识方法。参与者通过在线或离线方式完成三项活动:头脑风暴生成陈述、将陈述归类为主题类别、对陈述的重要性和可及性(易于获取)进行评分。
来自七个族裔群体的 37 名参与者参与了研究。共生成了 63 个陈述(支持项目),并将其归类为七个概念上相似的聚类(主题)(信任我会受到尊重;对我的检查经历感到安心;可及性和便利性;实际支持;解决文化多样性;根据个人需求提供量身定制的信息;提高对乳腺筛查的认识和理解)。“信任我会受到尊重”这一聚类被认为最重要,而“实际支持”聚类被认为最不易获得。基于种族、语言、残疾和以前是否参加过乳腺筛查,发现了一些回应之间的差异。
女性需要一系列支持才能参与乳腺筛查。研究结果强调了确保女性感到受到尊重、对进行筛查的工作人员建立信任、对乳腺筛查的积极体验提供安心、提供实际支持(特别是为不使用英语和/或阅读英语的人和残疾人士提供个性化/针对性支持)的重要性。
公众为信息单、同意书、招募和数据收集方法的制定做出了贡献。