Physical Medecine and Rehabilitation Department, Centre Hospitalier Régional Universitaire Brest, 29200 Brest, France.
Laboratoire de Traitement de l'information Médicale (LaTIM), Inserm U1101, Université Bretagne Occidentale, 29200 Brest, France.
Int J Environ Res Public Health. 2023 Jan 23;20(3):2086. doi: 10.3390/ijerph20032086.
We aimed to identify activity limitations and participation restrictions encountered by children and youth with disabilities for which assistive products and technology could be helpful. We used a convergent, parallel, mixed-methods design involving a nationwide, French survey composed of closed questions (quantitative) and open questions (qualitative) that enlightened the quantitative data. A total of 1055 responses were received, and 962 included: 92 from children and youth with disabilities, 493 from relatives and 377 from professionals. Difficulties frequently checked and described in detail were participation in recreational activities, leaving the house and traveling, participating in a group, and getting ready. Transversal explanations for difficulties were spontaneously provided (e.g., lack of accessibility and mobility). Solutions proposed included personal assistive devices to facilitate home life, high-tech devices, devices to compensate for impaired body functions, and adaptation of the familiar environment and daily activities. Few public solutions were proposed. The necessity of human assistance was emphasized. The mixed-methods design and involvement of different stakeholders identified common, macroscopic trends in difficulties encountered and desired solutions. Products and technology are required in the following domains: the familiar environment, accessibility and mobility, sports and leisure, high-technology, and family support. We provide suggestions to facilitate the development of innovative solutions.
我们旨在确定残疾儿童和青少年所遇到的活动受限和参与受限的问题,这些问题可以通过辅助产品和技术来解决。我们采用了一种汇聚式、平行式的混合方法设计,涉及一项全国性的、包含封闭式问题(定量)和开放式问题(定性)的法国调查,这些问题为定量数据提供了启示。共收到 1055 份回复,其中 962 份包含:92 份来自残疾儿童和青少年,493 份来自亲属,377 份来自专业人士。经常检查并详细描述的困难包括参与娱乐活动、离开家和旅行、参与团体活动以及准备活动。还自发提出了困难的横向解释(例如,缺乏可达性和流动性)。提出的解决方案包括个人辅助设备,以方便家庭生活、高科技设备、补偿身体功能障碍的设备,以及对熟悉的环境和日常活动的适应。很少有公共解决方案被提出。强调了对人力协助的需求。混合方法设计和不同利益相关者的参与确定了所遇到困难和所需解决方案的共同宏观趋势。产品和技术在以下领域是需要的:熟悉的环境、可达性和流动性、体育和休闲、高科技和家庭支持。我们提供了一些建议,以促进创新解决方案的开发。