Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.
J Intellect Disabil Res. 2023 May;67(5):397-414. doi: 10.1111/jir.13018. Epub 2023 Feb 19.
Multiple measures of mental health problems and mental wellbeing for adults with intellectual disabilities are available, but investigations into their reliability and validity are still in the early stages. The aim of this systematic review was to provide an update to previous evaluations of measures of common mental health problems and wellbeing in adults with mild to moderate intellectual disabilities (ID).
A systematic search was performed across three databases (MEDLINE, PsycINFO and SCOPUS). The literature search was limited to the years from 2009 to 2021 and to the original English versions. Ten papers evaluating nine measures were reviewed, and the psychometric properties of these measures were discussed using the Characteristics of Assessment Instructions for Psychiatric Disorders in Persons with Intellectual Developmental Disorders as a framework.
Four measures had at least one rating of 'good' across both dimensions of reliability and at least one dimension of validity and were deemed to have promising psychometric properties: the Clinical Outcomes in Routine Evaluation-Learning Disabilities, Impact of Events Scale-Intellectual Disabilities, Lancaster and Northgate Trauma Scales and Self-Assessment and Intervention (self-report section). Additionally, these measures were developed through consultations with mental health professionals and/or people with IDs and thus were deemed to have good content validity.
This review informs measurement choice for researchers and clinicians while highlighting a need for continued research efforts into the quality of measures available for people with IDs. The results were limited by incomplete psychometric evaluations of measures available. A paucity of psychometrically robust measures of mental wellbeing was observed.
针对成年智障人士的心理健康问题和整体幸福感，已有多种测量方法，但是对这些方法的可靠性和有效性的研究仍处于早期阶段。本系统评价的目的是对轻度至中度智障成年人常见心理健康问题和幸福感的测量方法进行最新评估。
在三个数据库（MEDLINE、PsycINFO 和 SCOPUS）中进行了系统检索。文献检索的时间范围限定在 2009 年至 2021 年，且仅限于英文原始版本。共评估了 10 篇评估 9 种测量方法的论文，并根据《智力发育障碍者精神障碍评估指导特征》，讨论了这些测量方法的心理计量学特性。
有 4 种测量方法在可靠性的两个维度和至少一个有效性维度上至少有一个“良好”的评分，被认为具有良好的心理计量学特性：临床结果在常规评估中的应用-学习障碍、事件影响量表-智力障碍、兰开斯特和诺思盖特创伤量表以及自我评估和干预（自我报告部分）。此外，这些测量方法是通过与心理健康专业人员和/或智障人士协商制定的，因此被认为具有良好的内容效度。
本综述为研究人员和临床医生提供了测量方法的选择依据，同时强调了需要继续努力提高智障人士可用测量方法的质量。由于可用测量方法的心理计量学评估不完整，结果受到限制。观察到缺乏心理计量学稳健的幸福感测量方法。
