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情感关怀视角:一项针对癌症患者、护理人员及医疗专业人员的定性研究。

Perspectives on Emotional Care: A Qualitative Study with Cancer Patients, Carers, and Health Professionals.

作者信息

Krishnasamy Meinir, Hassan Heidi, Jewell Carol, Moravski Irene, Lewin Tennille

机构信息

Academic Nursing Unit, Peter MacCallum Cancer Centre, Melbourne, VIC 3000, Australia.

Department of Nursing, School of Health Sciences, University of Melbourne, Melbourne, VIC 3052, Australia.

出版信息

Healthcare (Basel). 2023 Feb 4;11(4):452. doi: 10.3390/healthcare11040452.

Abstract

The emotional consequences of a cancer diagnosis are well documented and range from emotional distress, defined as suffering associated with feelings such as shock, fear, and uncertainty, through to psychological distress that may manifest as depression, anxiety, feelings of hopelessness, or heightened risk of suicide. This study set out to explore the assumption that the provision of emotional care should be the platform upon which all other aspects of cancer care are delivered and, that without attention to emotional care, no other aspects of cancer care can be fully realized. Utilizing qualitative focus groups and in-depth interviews with 47 patients, carers, and health professionals, emotional care was shown to be (1) fundamental to the provision of comprehensive cancer care, (2) essential to easing the burden of a cancer diagnosis and demands of treatment, (3) everyone's business, and (4) a component of cancer care at any time and every time. Future studies are needed to test interventions to enhance provision of intentional, purposeful, and individualized emotional care to help patents achieve the best health outcomes possible.

摘要

癌症诊断带来的情感后果已有充分记录,范围从情绪困扰(定义为与震惊、恐惧和不确定等感受相关的痛苦)到可能表现为抑郁、焦虑、绝望感或自杀风险增加的心理困扰。本研究旨在探讨这样一种假设,即提供情感关怀应作为提供癌症护理所有其他方面的基础,并且,如果不关注情感关怀,癌症护理的其他方面就无法充分实现。通过对47名患者、护理人员和医疗专业人员进行定性焦点小组讨论和深入访谈,结果表明情感关怀是:(1)提供全面癌症护理的基础;(2)减轻癌症诊断负担和治疗需求的关键;(3)人人有责;(4)癌症护理在任何时候、每次都是一个组成部分。未来需要开展研究来测试各种干预措施,以加强提供有针对性、有目的且个性化的情感关怀,帮助患者实现尽可能最佳的健康结果。

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