Centre for Mental Health and Society, Bangor University, Bangor, UK
Emergency Department, Ysbyty Gwynedd, Bangor, UK.
BMJ Open. 2023 Feb 28;13(2):e066512. doi: 10.1136/bmjopen-2022-066512.
Burn registers can provide high-quality clinical data that can be used for surveillance, research, planning service provision and clinical quality assessment. Many countrywide and intercountry burn registers now exist. The variables collected by burn registers are not standardised internationally. Few international burn register data comparisons are completed beyond basic morbidity and mortality statistics. Data comparisons across registers require analysis of homogenous variables. Little work has been done to understand whether burn registers have sufficiently similar variables to enable useful comparisons. The aim of this project is to compare the variables collected in countrywide and intercountry burn registers internationally to understand their similarities and differences.
Burn register custodians will be invited to participate in the study and to share their register data dictionaries. Study objectives are to compare patient inclusion and exclusion criteria of each participating burn register; determine which variables are collected by each register, and if variables are required or optional, identify common variable themes; and compare a sample of variables to understand how they are defined and measured. All variable names will be extracted from each register and common themes will be identified. Detailed information will be extracted for a sample of variables to give a deeper insight into similarities and differences between registers.
No patient data will be used in this project. Permission to use each register's data dictionary will be sought from respective register custodians. Results will be presented at international meetings and published in open access journals. These results will be of interest to register custodians and researchers wishing to explore international data comparisons, and countries wishing to establish their own burn register.
烧伤登记册可提供高质量的临床数据，可用于监测、研究、规划服务提供和临床质量评估。现在有许多全国性和国家间烧伤登记册。烧伤登记册收集的变量在国际上没有标准化。除了基本的发病率和死亡率统计数据外，很少有完成国际烧伤登记数据比较的工作。要进行登记册之间的数据比较，需要分析同质变量。很少有工作来了解烧伤登记册是否具有足够相似的变量以进行有用的比较。本项目的目的是比较国际上全国性和国家间烧伤登记册中收集的变量，以了解它们的相似性和差异性。
将邀请烧伤登记册保管人参与这项研究，并分享其登记册数据字典。研究目的是比较每个参与烧伤登记册的患者纳入和排除标准；确定每个登记册收集了哪些变量，如果是必需或可选变量，确定常见的变量主题；并比较样本变量以了解它们的定义和测量方式。将从每个登记册中提取所有变量名称，并确定共同主题。将对样本变量进行详细信息提取，以更深入地了解登记册之间的相似性和差异性。
本项目不会使用任何患者数据。将向各自的登记册保管人寻求使用每个登记册数据字典的许可。研究结果将在国际会议上进行报告，并在开放获取期刊上发表。这些结果将引起登记册保管人和希望探索国际数据比较的研究人员以及希望建立自己的烧伤登记册的国家的兴趣。
