Gross Elena, Ruiz de la Torre Elena, Martelletti Paolo
KetoSwiss AG, Basel, Switzerland.
European Migraine and Headache Alliance, Brussels, Belgium.
Neurol Ther. 2023 Jun;12(3):703-709. doi: 10.1007/s40120-023-00456-x. Epub 2023 Mar 5.
The stigma of migraine, despite an impressive body of data on the epidemiological of migraine and the associated disability, burden and cost of migraine to patients, has not been fully evaluated as an important factor in the chronicization of the disease and social isolation of the patient. In this commentary, we present three points of view. From the point of view of a European advocacy body active in the field of migraine medicine, actions to improve the perception of migraine within the community regarding the stigma for people with migraine are presented at the personal, relational and occupational levels. From the point of view of a clinician who is an expert on migraine, proposals are made for treatment and rehabilitation paths specifically dedicated to the reintegration of these individuals into social contexts.
尽管有大量关于偏头痛流行病学以及偏头痛给患者带来的相关残疾、负担和成本的数据，但偏头痛的污名化作为该疾病慢性化和患者社会隔离的一个重要因素，尚未得到充分评估。在这篇评论中，我们提出三种观点。从活跃于偏头痛医学领域的欧洲倡导机构的角度，在个人、人际关系和职业层面上，介绍了为改善社区内对偏头痛患者污名化的认知而采取的行动。从一位偏头痛专家临床医生的角度，提出了专门致力于让这些患者重新融入社会环境的治疗和康复途径的建议。
