Alwan Ibrahim Al, Alsalamah Shmokh, Albaiahy Arwa, Almazyad Lujain, Karim Ragad, Alenazi Areej, Alzayer Jumana, Alhudaif Abdulrahman, Sheshah Eman, Badri Motasim, Babiker Amir
College of Medicine, King Saud Bin Abdulaziz University for Health Sciences, Riyadh, Saudi Arabia.
King Abdullah Specialized Children's Hospital, Ministry of National Guard Health Affairs, Riyadh, Saudi Arabia.
Sudan J Paediatr. 2022;22(2):138-146. doi: 10.24911/SJP.106-1670347614.
This study aimed to assess parents' perceptions of the quality of life (QoL) of their children with type 1 diabetes (T1D) during Ramadan fasting (RF). In this cross-sectional study, an Arabic-translated version of the standard diabetes-specific QoL questionnaire (PedsQL™ version 3.0) was used to compare perceptions of QoL during Ramadan month (Rm) versus non-Rm (NRm) of parents of children/adolescents with T1D from two tertiary hospitals in Riyadh. We used regression analysis to compare proxies (parents' reports) of their perceptions on their children/adolescents' QoL during Rm compared to NRm. A sample of 61 proxies (parents') of two age groups T1D offspring: 8-12 years (41%) and 13-18 years (59%) who reported their perceptions of their children/adolescents QoL during Rm were matched by children/adolescents' age and gender of 61 proxies in NRm. QoL scores of all domains were significantly lower in Rm compared to NRm; p < 0.0001, however, worries domain showed no statistical differences p = 0.052 in a regression analysis. The total aggregate median (IQR) in Rm was 850 (612-1,062) compared to 1,750 (1,475-2,062) in NRm, p < 0.001. The highest differences in NRm and Rm median scores were observed in communications (OR = 3.64; 95% CI 2.7-5.57) and treatment adherence (OR = 3.09; 95% CI 2.48-3.84) domains especially in the age of 13-18 years. Parents of adolescent boys, who are usually risk-takers and more exposed to outdoor activities, perceived lower QoL for them. Parents of adolescents with T1D perceived a lower QoL for their children during RF, especially in the treatment adherence and communication domains.
本研究旨在评估斋月禁食（RF）期间1型糖尿病（T1D）患儿父母对其子女生活质量（QoL）的认知。在这项横断面研究中，使用了标准糖尿病特异性生活质量问卷（PedsQL™ 3.0版）的阿拉伯语翻译版本，以比较利雅得两家三级医院中T1D儿童/青少年的父母在斋月期间（Rm）与非斋月期间（NRm）对生活质量的认知。我们使用回归分析来比较他们在Rm期间与NRm期间对子女/青少年生活质量认知的代理指标（父母报告）。选取了两个年龄组T1D患儿的61名代理指标（父母）：8至12岁（41%）和13至18岁（59%），他们报告了在Rm期间对子女/青少年生活质量的认知，并按照子女/青少年的年龄和性别与NRm中的61名代理指标进行匹配。与NRm相比，Rm期间所有领域的生活质量得分均显著更低；p < 0.0001，然而，在回归分析中，担忧领域无统计学差异，p = 0.052。Rm期间的总中位数（IQR）为850（612 - 1,062），而NRm期间为1,750（1,475 - 2,062），p < 0.001。在沟通（OR = 3.64；95% CI 2.7 - 5.57）和治疗依从性（OR = 3.09；95% CI 2.48 - 3.84）领域，尤其是在13至18岁年龄段，NRm和Rm的中位数得分差异最大。通常具有冒险精神且更多参与户外活动的青春期男孩的父母认为他们的生活质量较低。T1D青少年的父母认为在RF期间其子女的生活质量较低，尤其是在治疗依从性和沟通领域。
