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1型糖尿病学龄儿童的生活质量:一项横断面研究。

Quality of Life Among School-Age Children With Type 1 Diabetes Mellitus: A Cross-Sectional Study.

作者信息

Mohammed Amira Adel, Awad Maabreh Roqia Saleem, Alrabab'a Mahmoud H, Eyadat Anwar M, Hani Salam Bani

机构信息

Primary Care Nursing, Faculty of Nursing, Al-Ahliyya Amman University, Amman, Jordan.

Faculty of Nursing, South Valley University, Qena, Egypt.

出版信息

SAGE Open Nurs. 2025 Aug 17;11:23779608251369588. doi: 10.1177/23779608251369588. eCollection 2025 Jan-Dec.

DOI:10.1177/23779608251369588
PMID:40837183
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12361829/
Abstract

BACKGROUND

Ensuring good health and well-being for children requires a high quality of life (QOL). Sustainable development has led to the elimination of many chronic and epidemic diseases. QOL is a multifaceted system encompassing several dimensions, including social, physical, and psychological functioning, which has emerged as a necessary outcome for children with chronic disorders.

OBJECTIVES

This study aimed to understand QOL in Egyptian school-age children with type 1 diabetes mellitus (T1DM). It examined sociocultural, economic, and healthcare issues faced by these children, revealing unique determinants such as family dynamics and community perceptions in Egypt, which differ from global data.

METHODS

A cross-sectional study was used at the Hospital of Health Insurance outpatient clinics in Banha, Egypt. A group of healthy peers was compared with another group from the outpatient clinic. 412 school children, ages 6 to 12 years, had T1DM, and 412 healthy peer groups with the same child age and gender, the researchers interviewed. Three tools were used: a demographic data sheet, a socioeconomic scale, and the Pediatric Quality of Life Inventory 4.0 Generic Core Scale.

RESULTS

The mean age of children was 12.9 ± 3.2. More than 60% of diabetic children had uncontrolled blood glucose levels, and 60% had poor socioeconomic levels. Children with diabetes had a significantly lower QOL than healthy peers in all dimensions. For the duration of the disease, where emotional function from the QOL was only affected, males revealed significantly higher scores related to school functioning. Children with middle and high socioeconomic status showed a highly significant relationship to school, social, and total QOL.

CONCLUSION

T1DM had a negative effect on all QOL domains of the school children. The researchers recommended establishing protocols integrated between children's homes, schools, and health insurance hospitals and clinics for providing comprehensive health education.

摘要

背景

确保儿童的健康和幸福需要高质量的生活(QOL)。可持续发展已促使许多慢性和流行性疾病被消除。生活质量是一个多方面的系统,涵盖社会、身体和心理功能等多个维度,已成为患有慢性疾病儿童的一个必要结果。

目的

本研究旨在了解埃及学龄期1型糖尿病(T1DM)儿童的生活质量。研究调查了这些儿童面临的社会文化、经济和医疗保健问题,揭示了埃及独特的决定因素,如家庭动态和社区观念,这些与全球数据不同。

方法

在埃及巴尼亚的健康保险门诊医院进行了一项横断面研究。将一组健康同龄人(对照组)与另一组门诊患者进行比较。研究人员对412名6至12岁患有1型糖尿病的学龄儿童以及412名年龄和性别相同的健康同龄人群体进行了访谈。使用了三种工具:人口数据表、社会经济量表和儿童生活质量量表4.0通用核心量表。

结果

儿童的平均年龄为12.9±3.2岁。超过60%的糖尿病儿童血糖水平控制不佳,60%的儿童社会经济水平较差。糖尿病儿童在所有维度上的生活质量均显著低于健康同龄人。在疾病持续时间方面,仅生活质量的情感功能受到影响,男性在学校功能方面的得分显著更高。社会经济地位中等和较高的儿童与学校、社会和总体生活质量之间存在高度显著的关系。

结论

1型糖尿病对学龄儿童的所有生活质量领域都有负面影响。研究人员建议在儿童家庭、学校和健康保险医院及诊所之间建立综合协议,以提供全面的健康教育。