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“我只能独自面对”:西班牙裔群体在乳腺癌治疗中的应对体验。

"I Had to Do It All Alone": Hispanic Perspectives on Navigating Breast Cancer Treatment.

机构信息

School of Social Work, San Diego State University, San Diego, CA 92182, USA.

出版信息

Int J Environ Res Public Health. 2023 Feb 25;20(5):4163. doi: 10.3390/ijerph20054163.

Abstract

Cancer patients are at a high risk for COVID infection and its corresponding impacts on treatment delay, social isolation, and psychological distress. Hispanic breast cancer patients may be more vulnerable due to a lack of resources and language barriers, widening disparities in cancer care. This qualitative study explored the challenges and obstacles to cancer care during the COVID pandemic among 27 Hispanic females from a United States-Mexico border region. Data were collected via individual in-depth interviews and analyzed using thematic analysis. The majority of the participants were interviewed in Spanish. More than half (55.6%, n = 15) were diagnosed with breast cancer within the prior year to the interview. One-third of the participants (33.3%, n = 9) reported that COVID somewhat to greatly impacted their cancer care. Study findings revealed potential barriers and challenges for cancer care at multiple levels (e.g., medical, psychosocial, financial level) during the COVID pandemic. Five major themes reported include: (1) delays in testing and access to care; (2) fear of COVID infection; (3) social isolation and reduced social support; (4) challenges in navigating treatments alone; and (5) financial hardships. Our findings highlight the importance for health care practitioners to understand various challenges encountered by underserved Hispanic breast cancer patients due to COVID. Screening for psychological distress and exploring approaches to expand social support to address these challenges are discussed.

摘要

癌症患者感染 COVID-19 的风险较高,并且会对治疗的延误、社会隔离和心理困扰产生相应影响。由于资源匮乏和语言障碍,西班牙裔乳腺癌患者可能更容易受到影响,从而导致癌症治疗的差距进一步扩大。本定性研究探讨了美国-墨西哥边境地区的 27 名西班牙裔女性在 COVID-19 大流行期间癌症护理所面临的挑战和障碍。通过个体深入访谈收集数据,并使用主题分析进行分析。大多数参与者都是用西班牙语接受采访的。超过一半(55.6%,n=15)的参与者在接受采访前一年被诊断出患有乳腺癌。三分之一的参与者(33.3%,n=9)表示 COVID-19 在一定程度上对他们的癌症护理产生了重大影响。研究结果揭示了 COVID-19 大流行期间癌症护理在多个层面上(如医疗、心理社会、财务层面)可能存在的障碍和挑战。报告的五个主要主题包括:(1)检测和获得护理的延迟;(2)对 COVID-19 感染的恐惧;(3)社会隔离和社会支持减少;(4)独自应对治疗的挑战;(5)经济困难。我们的研究结果强调了医疗保健从业者了解由于 COVID 而遭受服务不足的西班牙裔乳腺癌患者所面临的各种挑战的重要性。筛查心理困扰并探讨扩大社会支持以解决这些挑战的方法。

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Breast Cancer Disparities and the Digital Divide.乳腺癌差异与数字鸿沟。
Curr Breast Cancer Rep. 2022;14(4):205-212. doi: 10.1007/s12609-022-00468-w. Epub 2022 Nov 28.

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