Waller Amy, Hullick Carolyn, Sanson-Fisher Rob, Herrmann-Johns Anne
Health Behaviour Research Collaborative, School of Medicine and Public Health, University of Newcastle, University Drive, Callaghan, NSW, Australia.
Priority Research Centre for Health Behaviour, School of Medicine and Public Health, University of Newcastle, University Drive, Callaghan, NSW, Australia.
Asia Pac J Oncol Nurs. 2023 Jan 26;10(3):100194. doi: 10.1016/j.apjon.2023.100194. eCollection 2023 Mar.
People diagnosed with brain cancer commonly present to the emergency department (ED). There is uncertainty about essential components and processes of optimal care from the perspective of consumers, and few guidelines exist to inform practice. This study examined the perceptions of outpatients and their support persons regarding what constitutes optimal care for people with brain cancer presenting to the ED.
A cross sectional descriptive survey study was undertaken. Participants included adults attending hospital outpatient clinics ( = 181, 60% of eligible participants). Participants completed a survey assessing perceptions of optimal care for brain cancer patients presenting to emergency department and socio-demographic characteristics.
The survey items endorsed as 'essential' by participants included that the emergency department team help patients: 'understand signs and symptoms to watch out for' (51%); 'understand the next steps in care and why' (48%); 'understand if their medical condition suggests it is likely they will die in hospital' (47%); 'ask patients if they have a substitute decision maker and want that person told they are in the emergency department' (44%); 'understand the purpose of tests and procedures' (41%).
Symptom management, effective communication and supported decision-making should be prioritised by ED teams. Further research to establish the views of those affected by brain cancer about essential care delivered in the ED setting, and to compare these views with the quality of care that is actually delivered, is warranted.
被诊断患有脑癌的患者通常会前往急诊科就诊。从患者的角度来看，最佳护理的基本组成部分和流程尚不确定，而且几乎没有指南可指导实践。本研究调查了门诊患者及其支持人员对于脑癌患者前往急诊科时最佳护理构成要素的看法。
开展了一项横断面描述性调查研究。参与者包括在医院门诊就诊的成年人（n = 181，占符合条件参与者的60%）。参与者完成了一项调查，评估对脑癌患者前往急诊科时最佳护理的看法以及社会人口学特征。
参与者认可为“必不可少”的调查项目包括急诊科团队帮助患者：“了解需要留意的体征和症状”（51%）；“了解护理的下一步措施及原因”（48%）；“了解其病情是否表明可能会在医院死亡”（47%）；“询问患者是否有替代决策者，并告知该人员患者在急诊科”（44%）；“了解检查和程序的目的”（41%）。
急诊科团队应优先考虑症状管理、有效沟通和支持性决策。有必要进一步开展研究，以确定脑癌患者对急诊科提供的基本护理的看法，并将这些看法与实际提供的护理质量进行比较。
