Neis Miriam, Issi Helena Becker, Motta Maria da Graça Corso da, Rocha Cristianne Maria Famer, Carvalho Paulo Roberto Antonacci
Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Programa de Pós-Graduação em Enfermagem. Porto Alegre, Rio Grande do Sul, Brazil.
Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Departamento de Enfermagem Materno-Infantil. Porto Alegre, Rio Grande do Sul, Brazil.
Rev Gaucha Enferm. 2023 Mar 13;43:e20220174. doi: 10.1590/1983-1447.2022.20220174.en. eCollection 2023.
To reveal the experience of family members after learning their child would adopt palliative care.
Phenomenological research on Heidegger's perspective. The participants were eleven family members of children who were recommended palliative care in the Pediatric Intensive Care Unit from a university hospital in southern Brazil. The statements were obtained in a semi-structured interview, from January to November/2017, and submitted to Heidegger's theoretical-philosophical analysis. Research approved by the institution's Ethical Committee.
The communication of palliative care triggers the perception of the child's existencial facticity in the Family, revealing reactions explained in the thematic dimensions: "Coping with the finiteness of the child when confronted with the proposal of adopting palliative care" and "The need for compassionate and attentive care".
Phenomenology allows us to understand the parent's existential purpose. An understanding perspective can help interdisciplinary teams to communicate the adoption of palliative care in a sensitive and ethical way, focusing on the best interest of the child.
揭示家庭成员在得知其孩子将接受姑息治疗后的经历。
基于海德格尔观点的现象学研究。参与者为来自巴西南部一家大学医院儿科重症监护病房中被建议接受姑息治疗的儿童的11名家庭成员。这些陈述通过半结构化访谈于2017年1月至11月获得，并提交给海德格尔的理论哲学分析。该研究获机构伦理委员会批准。
姑息治疗的告知引发了家庭对孩子生存现实性的认知，揭示了在主题维度中所解释的反应：“面对接受姑息治疗提议时应对孩子的有限性”和“对富有同情心和体贴入微护理的需求”。
现象学使我们能够理解父母的生存目的。一种理解性的视角有助于跨学科团队以敏感且符合伦理的方式传达接受姑息治疗的决定，将重点放在孩子的最大利益上。
