Kállay Éva, Medrea Flavia, Müller-Fábián Andrea, Dégi László Csaba
Faculty of Psychology and Educational Sciences, Babeș-Bolyai University, Cluj-Napoca, Romania.
Faculty of Sociology and Social Work, Babeș-Bolyai University, Cluj-Napoca, Romania.
Front Psychol. 2023 Mar 2;14:1122339. doi: 10.3389/fpsyg.2023.1122339. eCollection 2023.
Fear of cancer progression (FoP) is one of the most frequently reported unmet needs invoked by the majority of cancer patients, which may significantly impair the quality of life (QoL) of patients. The major objective of the present cross-sectional study was to investigate the specificities of the relationship between different dimensions and intensity of FoP and different aspects of patients' QoL during the COVID-19 pandemic in Romania.
A nationwide sample of 330 participants completed a survey, including measures of demographic characteristics, medical variables, QoL, and FoP. Multivariate General Linear and Hierarchical Regression Models were conducted in order to assess the relationship between variables.
Our results indicate that less than a quarter of the sample experienced low, between 63 and 70% moderate, and 15% high levels of FoP. Our results also indicate that anxiety/worry related to the possibility of progression of the disease, and loss of independence produced significant differences with large effect sizes in all the dimensions of QoL.
Our results indicate that besides affective reactions, the fear of cancer survivors to lose independence, not being able to attend to their own lives, seems to be a considerable threat, especially in the context of Romanian health system which has difficulties in offering qualitative psychosocial care for cancer patients. The idea that patients will have to rely on others and may not function well independently, not being able to attend to their own lives, seems to be a considerable threat, next to the experienced affective reactions .
对癌症进展的恐惧(FoP)是大多数癌症患者最常报告的未满足需求之一,这可能会严重损害患者的生活质量(QoL)。本横断面研究的主要目的是调查在罗马尼亚的新冠疫情期间,FoP的不同维度和强度与患者生活质量不同方面之间关系的特异性。
一个全国性的330名参与者样本完成了一项调查,包括人口统计学特征、医学变量、生活质量和对癌症进展的恐惧等测量指标。进行了多变量一般线性和分层回归模型分析,以评估变量之间的关系。
我们的结果表明,样本中不到四分之一的人经历了低水平的对癌症进展的恐惧,63%至70%的人经历了中等水平的恐惧,15%的人经历了高水平的恐惧。我们的结果还表明,与疾病进展可能性相关的焦虑/担忧以及失去独立性在生活质量的所有维度上都产生了具有大效应量的显著差异。
我们的结果表明,除了情感反应外,癌症幸存者对失去独立性、无法自理生活的恐惧似乎是一个相当大的威胁,尤其是在罗马尼亚卫生系统难以提供高质量癌症患者心理社会护理的背景下。患者将不得不依赖他人且可能无法很好地独立生活、无法自理的想法,似乎是继情感反应之后的一个相当大的威胁。