Clinical Psychology Unit, Department of Neuroscience, Hospital 'Città della Salute e della Scienza', University of Turin, Turin, Italy.
Department of Clinical and Biological Sciences, University of Turin, Turin, Italy.
Am J Hosp Palliat Care. 2024 Feb;41(2):179-186. doi: 10.1177/10499091231166373. Epub 2023 Mar 28.
The objective of this cross-sectional study is to investigate Dignity-Related Loss of Personal Autonomy (DR-LPA) intended as loss of relational independence causing dignity-related distress. Moreover, it analyzes its possible relationships with demoralization, spirituality, quality of life, hope, and coping styles in a sample composed of 207 end-of-life cancer patients. These variables have been assessed through the following rating scales: Patient Dignity Inventory - Italian version, Demoralization Scale - Italian version, Functional Assessment of Cancer Therapy Scale - General Measure, Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being, Brief Coping Orientation to Problem Experienced, and Herth Hope Index. The results have shown that most of the DR-LPA items were considered a problem by most patients. Functional, social, emotional, and spiritual wellbeing, disheartenment, age, and sex emerged as significant predictors of DR-LPA. In conclusion, this study showed that DR-LPA can be a relevant concern for patients at the end-of-life and for this reason it becomes necessary for psychosocial provides to consider it to deliver better dignity conserving care.
本横断面研究旨在探讨尊严相关的个人自主丧失（DR-LPA），它被定义为导致尊严相关困扰的关系独立性丧失。此外，本研究分析了在由 207 名临终癌症患者组成的样本中，DR-LPA 与道德低落、灵性、生活质量、希望和应对方式之间的可能关系。这些变量通过以下评定量表进行评估：患者尊严量表-意大利语版、道德低落量表-意大利语版、癌症治疗功能评估量表-一般测量、慢性病治疗的功能性评估-精神幸福感、简明应对方式问卷、赫特希望指数。结果表明，大多数 DR-LPA 项目被大多数患者认为是一个问题。功能、社会、情感和精神健康、道德低落、年龄和性别是 DR-LPA 的显著预测因素。总之，这项研究表明，DR-LPA 可能是临终患者的一个重要关注点，因此，社会心理护理人员有必要考虑这一点，以提供更好的尊严保护护理。
