Richards Alexis, Raymond-Flesch Marissa, Hughes Shana D, Zhou Yinglan, Koester Kimberly A
Department of Pediatrics, Division of Adolescent and Young Adult Medicine, University of California San Francisco, San Francisco, CA 94107, USA.
Department of Pediatrics, Division of Adolescent and Young Adult Medicine, Philip R. Lee Institute for Health Policy Studies, University of California San Francisco, San Francisco, CA 94107, USA.
Children (Basel). 2023 Mar 1;10(3):483. doi: 10.3390/children10030483.
Optimal care for pediatric and adolescent patients is carried out under a triadic engagement model, whereby the patient, caregiver, and clinician work in collaboration. Seeking input from all triad members in the development and implementation of clinical trials and interventions may improve health outcomes for children and adolescents. Sufficient evidence demonstrating how to effectively engage stakeholders from all branches of this triadic model is lacking. We address this gap by describing the successes and challenges our team has encountered while convening advisory groups with adolescent patients, parent stakeholders, and their clinicians to assist in the development and deployment of a technology-based intervention to promote the utilization of sexual and reproductive health services by increasing adolescent-clinician alone-time. Each stakeholder group contributed in unique and complementary ways. Working with advisors, our team aligned the priorities of each group with the goals of the research team. The results were improvements made in the content, design, and delivery of the TRUST intervention. While we were largely successful in the recruitment and engagement of adolescent patients and clinicians, we had less success with parents. Future research will need to explore additional strategies for recruitment and engagement of parents, particularly in rural, minority, and underserved communities.
对儿科和青少年患者的最佳护理是在三方参与模式下进行的，即患者、护理人员和临床医生协同合作。在临床试验和干预措施的制定与实施过程中征求三方成员的意见，可能会改善儿童和青少年的健康状况。目前缺乏足够的证据来证明如何有效地让这个三方模式各方面的利益相关者参与进来。我们通过描述我们团队在召集由青少年患者、家长利益相关者及其临床医生组成的咨询小组以协助开发和部署一项基于技术的干预措施时所遇到的成功经验和挑战，来填补这一空白。该干预措施旨在通过增加青少年与临床医生的单独相处时间来促进性健康和生殖健康服务的利用。每个利益相关者群体都以独特且互补的方式做出了贡献。通过与顾问合作，我们团队使每个群体的优先事项与研究团队的目标保持一致。结果是TRUST干预措施在内容、设计和实施方面都得到了改进。虽然我们在招募和吸引青少年患者及临床医生方面取得了很大成功，但在家长方面成效较小。未来的研究需要探索更多招募和吸引家长的策略，尤其是在农村、少数族裔和服务不足的社区。
